I think this is a verity. I saw the 6th psychiatrist I have seen since October yesterday, and got another med fix.
Since I was first diagnosed when I was 22, I have been on the following medications.
(In no particular order)
Cogentin
vistoril
Cogentin
vistoril
Prozac
Zoloft
Ritalin
Tegretol
Dalmane
Wellbutrin
Valproic Acid
Lithibid (Lithium)
Depakote
Geodon
Seroquel
Trazadone
Lamictal
Paxil
Abilify
Topamax
Anafranil
Amitripyline
Elavil
Haldol
Trilptal
Xanax
Nardil
Klonepin
Ritalin
Lexapro
Paxil
Remeron
Ambien
Ativan
Cymbalta
I have also had ECT.
All given in an attempt to feel better, to get out of crippling depressions, for some sense of normalcy and living a life.
The other night PBS broadcast a Frontline special about Bipolar children. If anything can be learned from this cautionary tale, it would be "be aggressive, question everything". I heard Kay Jamieson say this back in 03, "badger (the pdoc) badger, badger".
I have to confess, it wasn't until about 18 months ago I started to tackle my illness agressively. Before that, I took the meds as perscribed by the pdoc, without questioning them, or asking what they would do for me. With the exception of Lamictal, which had to be stopped when I developed a rash, I did not question the doctor. He had a degree in medicine. My education, though it's good, couldn't hold a candle to his learning. I figured he knew best.
I know differently now. I don't take meds without questioning what this is and if the dosage seems too high or low, I question it. I badger the doctor to the point he almost hates writing scripts for me. But I feel informed and seem happy
But I cannot help but wonder, with all the trouble I have had with all these different meds, if I am being tested. Right before I had ECT I remember telling a very good friend of mine "I would do anything to feel better. Anything".
And that is what I am currently doing. Anything.
ANYTHING to feel better, which includes meds and talk therapy.
So I am currently on a new shrink, my first woman shrink in private practice. She adjusted my med cocktail- I was hoping she would lower it, but it's now
2200 mg of lithium daily,
160 mg of Geodon, lowered from 180, taken at night,
and 125 mg of Seroquel taken 5 times during the day. It makes me sleep most of the day, and when I wake, it's time to pop another pill.
I still have to take Nexium every other day because all these years on lithium have caused me to develop a case of GERD. I will never be able to eat spicy food again.
And why do I put up with all this chaos, this psychic pain, plus the wear and tear on my body?
Because I want to get better. I want to be the old me, the me I am when I am well. I like that person. The person who is a good friend, and daughter. The person who embraces life with both hands and enjoys it. The person who gets joy from simple things, seeing a rainbow after soft rains, seeing squirrels outside my apartment gathering food for the winter. Snow.
What I do for love. The love of me, the love that I will find hope again, and a reason to continue. I know it's out there, I have friends and family who believe in me. It keeps me going, when right now taking one step in front of the other is hard, very difficult.
Today I signed up for a 60 mile walk in Philly for breast cancer. It will take up the entire weekend. I've never walked that much before and need to start training for it. Fortunately, it's not for quite some time so it's all do-able.
But I got thinking about cancer, especially since I had a scare earlier last month with a mammogram. If someone suffers from cancer, people understand. They don't so much understand about mental illness, which was the purpose of me writing this blog. I intended to be as candid as I could about my struggles with this illness and share the not so pretty parts not sanitized or bowdlerized that other people write about. There is still a lot of "Snake Pit" unfortunately out there and people need to be educated.
Putting all those meds in your body over a 20 year period is hell. The side effects from them, from mild diarrhea to the latest which involved suicidal ideation with a med that had a black box warning and an aborted attempt and subsequent hospitalization. I have anxiety now, something I never had before, and have been told it's a side effect from the current cocktail.
Which makes me wonder, would a "normal" person go through this? Would a normal person subject their body to the slings and arrows that come from all these meds? 24 in 20 years, that's almost one and a half meds per year. All in the attempt to feel "normal" to be able to live?
I don't think so. I look at the people I know who haven't gone through this, they wonder how I can do it. I don't know if they could, chances are they wouldn't be able to.
Yes, I am a survivor. Maybe that is not visible, but I am doing the best I can. I may only be treading water now, but as long as I don't drown it's OK. Someday I will learn how to swim. Maybe it's today.




10 comments:
I've been on all the meds you listed except six, unless Gabapentin, and Risperal are different names for two of yours. Plus Ritalin. No ECT. And I've been on revolving cocktails for HIV and those med side effects at the same time. And I don't know why. I know this other self that would exist if all this weren't in the way, and I know what she would do with her life, and I believe in her, and for rare brief times she has been able to take over. Not so much the last three years, so hope is a struggle for me, too. But I know that educating people about it all in the ways you can, when you can matters. And letting other people that they're not the only ones who feel that way matters to me.
Oh - you did say Ritalin, - and I forgot Ativan if you didn't say that, and Diazepam and Sonata. ...For wellness, and companionship and embracing life with my whole body, and enjoying simple things, and love, and hope whenever possible, even if briefly and rarely.
I have been on some of those as well. What is it about medication and why do we have to keep changing?
It makes me wonder if Meds truly work...and if it is just a farce for the medical industry to make money.
Love your blog and your kitty! :)
Dream Writer,
Thank you! And Holly the cat thanks you!
"But I know that educating people about it all in the ways you can, when you can matters. And letting other people that they're not the only ones who feel that way matters to me."
That's why I am blogging. to let other people know they are not alone. Depression sometimes makes you think you are the only person to feel this way, and it's important to know that others are struggling too.
We can all learn from each other.
Thank you phc!
You're deserving and welcome. You can upload and post the award from my Friday post (if you like) - to go with your Holly-Lion. And pass it on.
Hi,
I came upon your blog via furiousseasons.com.
I, too, have been on all those meds, with the exception of Haldol. For me, it's been 12 years and 50+ different medications. It's been rough. It's still rough. But it's comforting to read about others' experiences, others' survival stories. So, thanks for writing.
.
Thank you. I like Furious Seasons too.
HOLY CRAP. That is a lot of drugs. That's enough drugs to kill an army if administered with that effect in mind. I have been "bipolar" for nearly 30 years. I have not ever taken any drugs for it. I don't know if "bipolar" is what I really am, because it seems like a label given to a person with a particular combination of other shitty stuff. It's like the Lupus of the mind or something. Anyhoo, doing my best to not go down this medicated road, because for hell's sake, they haven't got a CURE. It seems like all those meds do is make you miss that original, slightly fucked up version of yourself that is now held hostage somewhere by meds. It frightens me, and at the same time, I understand your desperation to want to feel normal again. It's a rock and a hard place where we mentally ill reside. My best to you. Will continue to follow your blog.
I also feel the way you do about cancer. If only Mental illness made us bald!! My son died of a heart defect at 16. Many more research dollars have been poured into pediatric cancer research that pediatric heart research even though more kids die from heart defects than from cancer. My theory--lack of "baldness." Our internal hell is not visible, so no one gives a crap.
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