Thursday, January 8, 2009

Truly Amazing


I have had more hits in the last three days then I have in the history of this blog since I started it in October 07.

There can be only one reason- I have had three shout outs from three wonderful bloggers this week, Philip Dawdy, Liz Spikol, and Therese Bouchard. 

Since I only know one of them in real life-  I want them to know, even though I cannot buy them a beer in real life- these buds are for them. Pretend they are ice cold brewskis. Sit back and enjoy. And thank you. 

Wednesday, January 7, 2009

More Cowbell


Seriously, if you were walking through hell, and had to keep going, wouldn't you want a little more cowbell to help you on your way?

I can't get these darn You Tube videos to load for some reason, but. here they are.

More Cowbell-Blue Oyster Cult- original Saturday Night Live version starring Will Farrell.


Burning For You- Original VH1 video back when VH1 played videos and not reality dating shows with Flavor Flav and Bret Michaels.

And lastly, Joan Crawford 1981 VH1 version- and I am freaking out. I cannot believe most of the girls in my lame High School wore saddle shoes back in 1980, me included!

I got some serious rockin' to do, and cowbells to hit.

Tuesday, January 6, 2009

Best Psychiatrist Ever?


Here is one Psychiatrist I wouldn't mind seeing....And if catnip is discussed in the DSM V, we know who was responsible.

Haldol Nightmare

I wrote this over the weekend for Gianna Kali, in her new forum for those having a problem with their meds.

It's still a work in progress, but this is my nightmare on Haldol. I have not altered anything or changed anything, and I hope it might give someone courage who are going through the same thing with this nightmare drug for me.

it's hard for me to write about since my Haldol experience happened in April 08 and took to July to recover. It's still raw.

Basically what transpired was one night I woke up to use the toilet, fell down on the floor and couldn't get up. Spent the night on the floor trying to get up on my feet, to get to the bathroom and couldn't move my arms or my legs. My parents found me a few hours later, By this time I I couldn't even move my muscles to urinate, but I could feel my bladder was full and it hurt like heck. I wanted to cry and couldn't shut my eyes. I wanted to talk and all I could do is grunt because I couldn't move my mouth.

My parents took me to the emergency room where i spent a week in the hospital - being on IV's for nourishment, and a catheter for the other thing. Had CAT scans, MRI"s x-rays, you name it they took it. I still couldn't move. My folks had both a Rabbi and Priest come in to give me last rites after I flatlined. After a week, they sent me to the Rehab facility where I had to learn to walk again and try to get control of every muscle in my body. Was there for 3 weeks. I couldn't even lie down, they brought me in on a wheel chair initially and it took 4 days for my muscles to relax to let me lie down. I had to sleep sitting up. It was a nightmare, I was in such pain and the people who had POA wouldn't let me take something like Perkoset for the pain or Oxy, because they felt all I needed was Tylenol, despite the fact the first hospital was adding that to my IV. I understand my screams could be heard all the way down the hall.

I found out back in November from a very respected Psychiatrist here- that when he did his internship at the same hospital where "Girl Interrupted" was done, he saw several cases like this from Haldol- you loose control of every muscle in your body.

I am fine now.But this is the drug from hell, it should have been pushed off the market years ago when the 1st case like this happened. No excuse.

I wouldn't wish this on my worst enemy.
=Susan


For more on Gianna's Beyond Meds Social Network, please go here.

Monday, January 5, 2009

Depakote apparently stopped working for Jett Travolta

TMZ is reporting today that Jett Travolta, John Travolta's son, was on Depakote when he died. Depakote is a drug for bipolar and also use for epilepsy and seizures. If the article is to believed (which I do believe it) Jett was also experiencing drug poop-out.

We're now told the grand mal seizures Jett suffered were "frequent and extremely serious." Travolta's lawyers, Michael Ossi and Michael McDermott, tell us "each seizure was like a death," with Jett losing consciousness and convulsing.


There have been reports Travolta refused to give his son anti-seizure meds because of Scientology but those stories are apparently erroneous- but the story is still developing.

Jett had been having seizures on an average of every four days, until he started taking Depakote. Ossi and McDermott say the drug initially worked, reducing the frequency to approximately once every three weeks.

Jett took Depakote for "several years," but it eventually lost its effectiveness, according to Ossi and McDermott. They say the Travoltas were concerned about possible physical damage. And, Jett went back to having around one seizure a week. So John Travolta and Kelly Preston, after consulting neurosurgeons, stopped administering the drug. No one is suggesting withdrawal of the medicine in any way caused the fatal episode.


My sympathies for Mr. Travolta and Ms. Preston.

Saturday, January 3, 2009

Have truer words ever been spoken?

The loneliness and sad ache is overwhelming tonight. i don't feel alive, yet again, I feel like I don't belong to my body, mind or soul. Urge to put my hand through the mirror to see if I can get into a parallel universe.

Then I found this quote. Have truer words ever been spoken?
They put the thing down your throat so you don't swallow your tongue, and they put electrodes on your head. That's what was recommended in Rockland County to discourage homosexual feelings. The effect is that you lose your memory and become a vegetable. You can't read a book because you get to page seventeen and have to go right back to page one again-Lou Reed


Brilliant! And yes, this is what they do to you when you get it. It's been 6 years, six long years and I still cannot read!

I have tried for the last ten minutes to post this You Tube video. It's not working. Heroin by Lou Reed and the Velvet Underground. The first song by Lou Reed I ever heard. One of the best guitars along with vintage Clapton and Duane Allman.

Sometimes I feel like I can't even sing-

"Sometimes I feel like I can't even sing,
I'm very scared for this world,
Very scared for me".
(R.E.M)

Yep, my crush on Michael Stipe has not been for naught.

Watching CNN today and yep, he nailed it over a decade ago.

"It's the end of the world as we know it....
And I feel fine".
(R.E.M)

What makes people start wars? Dunno. If it was up to me, I would have all the women in the world get together, read the "Lysistrata" and use it. It;s like this old song by Simon and Garfunkel from their very old album, "Wednesday Morning, 3 AM"

"Last night I had the strangest dream
I ever dreamed before,
I dreamed the world had all agreed to put an end to war".

What evil does lurk in the heart of men? The Shadow doesn't know anymore. He died today.

I don't know why I write til; my fingers bleed. I don't know why I write for hours on end over and over and over and =

I am going back to bed with my cat where it's safe and warm. I am taking my teddy bear into bed with me. Some days I feel like December 2012 cannot happen soon enough. And Soylent Green really is people.


****This is my brain rambling after watching CNN for 3 hours today. I know I will feel different tomorrow.*******


ETA: I don't want people to think I lean too much to either Right or Left. This is not the time and place nor will I discuss my personal politics here. What I am upset with is the children. i don't want to see little coffins being put out in the street. Two years ago I was fortunate to spend a week in Whitechapel, London, doing extensive research on a book that takes place in 1888, Whitechapel. What got me was as I was trying to be as historically accurate as possible, some of the places were destroyed during WW II. After a hard day of research, I would go to various pubs in that vicinity, nursing a Coke or a coffee, and listen to the stories of men and women and what they did during the bombing as children. That is what is upsetting me. I hope you understand. I'm spent.

Friday, January 2, 2009

A blogging respite for a day or two



My cat is not white, but you get the idea. She has turned into a demanding little fur ball and will not let me access my computer. I just put her in the bathroom for a few minutes to put this up......she wants lots of play, cuddles, and Pounces. Such is a cat's life. I am happy to do it for a purr in return, or a snuggle when I am on the couch reading.

Like Charles Dickens cat Williamina, who would blow out the candle on Dickens desk as he wrote, so he would put his quill down and play with her- I think this is the way my cat is telling me to take a day or two off the computer and just enjoy life with her.

So I will.

In the meantime, I want to pass on two wonderful stories to my readers. The first story is about the Polar Bear Club in NYC. No, not those beautiful white critters like Knut. These are the men and women who go into the frigid waters off Coney Island every New Years Eve. I did it once and it was fabulous. I hope to do it again.

The other one comes from Anthony, the blogger of "My Sick Mind". It is from the Philadelphia Inquirer, and in the spirit of the paper who gave you "Marley and Me" in serial form, it is about a cat and her owner. It's good. It reminds us, like Marley, to treasure time with our animals we share our life with, because we will most likely out live them.

Thursday, January 1, 2009

Susan-An Introduction

I have a lot of new readers coming in so I thought I would post an old article I wrote back in 02 explaining who I am= Enjoy.


I could feel my blue eyes opening, and the light was harsh. I shielded them with my palm, trying to wake. I gradually accustomed myself, and noticed, this was a twin size bed I was in, not my normal full size. My beloved cat was not nestling besides me, nor did I have the teddy that served as a sentinel since I was four. I thought for a moment, I was back in time, back in Graduate School, where life was good, and I shared a house in my state’s capital with four other young women. But as I tried to move, I noticed I couldn’t move. There was an IV attached to my arm, and one of those heart monitors like you would see on ER. And I was strapped down to the bed. It was the present, 1994, and I had been out of school for seven years. I could hear the doctors and nurses running by me, ignoring me. I had no idea where I was, I figured it was in the emergency room of Princeton Hospital. I asked the nurse what day it was as she ran by me. It was a Sunday morning, at four or five in the morning, and I wondered what the heck had I done again, since I took all those pills on Friday night? and why in Heaven’s name, couldn’t I succeed in killing myself?

I am a manic-depressive. I was one of those people, first misdiagnosed in my early twenties as depressive, then a month later diagnosed as bipolar. But this hospitalization in my early thirties, would evaluate me as bipolar, with a difference, I was an ultra rapid cycler with schizoaffective features.

This was not my first suicide attempt. This was one of many, starting with all the sturm und drang of adolescence. This would be my second to last serious attempt. I cannot begin to count all the times I have wanted to "shuffle off this mortal coil", as Hamlet said. I have tried pills, more times waking up to be Exorcist sick. I tried to use a hose to my car’s exhaust, not realizing I had a catalytic converter, which went on before I could fall asleep. I have thought of throwing myself off the Empire State Building, but I am deathly afraid of heights and have vertigo. And I have tried to slit my wrists, but could not get the razor blade out of that pink plastic Gillette razor. (Curse you Gillette!)

And I have been blessed with the mania, suffering for three years straight without crashing to anything other than mild depression. I was gifted then, doing two masters degrees and holding down three part time jobs. I had poems professionally published. Looking back they were nothing but masterful Sylvia Plath imitations. I was the belle of the English department, their golden girl about to go on for a PhD. And I was correct for the longest time. And then, just like the all time perfect day, it ended. It had to. A person cannot be manic for three years without illegal drugs, one has to crash eventually.

And I crashed. And what I learned was the same lesson every other manic-depressive or bipolar has learned. There is a hard side with genius. It is almost like what the ancient Greeks believed that the Gods give us unique things and talent with a huge price attached. And one of the prices that have affected every sufferer of this disease is both the mercurial aspect and the melancholy. Yes some of the greatest pieces of literature, art, music, and philosophy have been done by people who have suffered from this. And on the other hand, how many of us have looked at our wrists and wished you could put a razor blade or a box cutter on the vein, and allow your pain and heartache to ebb out, along with your life? And how many of us have had medication or alcohol to try to calm down the beasts in our head, leaving us comfortably numb?

Allow me to introduce myself. My name is Susan I am a manic depressive, living on the East Coast of the US. I when I wrote this piece , I had full-time job, and make a good living. I am in my late thirties, never married. No children by choice, I can’t see myself passing on this illness to a child of mine. Something that I know I am most fortunate to do, considering my hospitalizations, and treatments, This breaks my heart because my biggest wish in life is to be a wife and mother. The only thing worse than my manic depression is my stubbornness, which I am convinced I can show everyone who thinks I should be institutionalized for the rest of my life, that I can be a productive citizen.

As I write this I just got out of a four-day depression. That was four days of my life where getting out of bed was painful, so I didn’t except to use the toilet and feed my cat. It was too painful to get dressed. I looked at the pile of laundry and its too difficult to do that. It’s been too difficult to do anything, even thinking. Instead I sit in bed, hyper sleeping and listing to talk radio as white noise. And think about how I wish I had an exacto knife so I could slit my wrists and end it. And not having the energy to do it. And cursing myself now, because tomorrow I have to go to work. I have one clean outfit left, because I was too depressed to get out of bed, and did not go to the laundromat. and right now, I am so sad I don’t want to be around anyone, I want to be a hermit. I don’t want to feel anything , no emotions, nothing. Instead I have to put on a smiley face and make believe that all is well, when I feel it isn’t. And I sit here now, typing and wishing I could go into manic phrase, because I need it. I want it. And the guilt that I have spent four days of my life, which I can never get back, thanks to this horrible curse or blessing in my genes, depending on your viewpoint. To me it is neither a curse or a blessing. It's my entire life. And I wish, yes I wish I was normal.

Perhaps that is why I don’t take medication. I tried them all, they made me sick. And frankly, there is something about taking those little pills that numbs your creativity. You lose that perceived edge. You want to be normal, the lithium makes your skin crawl and you can’t keep food down. I have spent days in a fetal position on the bathroom floor waiting for lithium to get into my bloodstream. Depakote makes you fat. And Depakote takes away the highs and the lows. And without the highs and the lows you would be human. Just human. Not invincible. Just a regular guy. I would love to be a regular guy. But I find when the Depakote normalizes into my bloodstream, I cannot think. I become like a stroke victim - unable to think clearly. I forget things. I cannot dream. I have no creativity. And I cannot function. I do not like living like a puppet or a small child with people telling me what to do and what not to do. And that is how I get on meds.

So to the chagrin of my shrink, I am med free. I have a suicide number here when it gets bad. I know to call 911 and tell them to take me to the hospital. My shrink thinks I am a walking time bomb, but in fact I may just be one a very small minority who cannot take meds. I know there are some. And I look at other people who can take them and live full lives. Unfortunately, I find these people few and far between.(Authors note: After I wrote this piece in 2002 I went back to meds in 2003.At present I am trying to wean down to the lowest dose possible).


I have just found out about my birth family. I have always known I have been adopted, but I never saw the medical records. And now I have. I learned for the first time my maternal grandmother suffered from this illness. A great great grandmother was institutionalized and lobotomized because of this. A great grandfather killed himself. I come from a long line of alcoholics, and several of my uncles as well as 2 grandparents suffered from this. Alcohol and manic depression go hand in hand. If you want proof, look at John Berryman. If he didn’t kill himself, his liver would have given out.


But the thoughts race. I do not like that. The doctor prescribed Ritalin. I felt a huge surge of energy and rode my bike for 20 some miles before I stopped. I felt sick. I went to a police station and they called my folks to pick me up. And called my shrink who said I was having a toxic reaction to Ritalin, very rare. So when the thoughts race, I feel as if I am possessed.

Suicide scares me. I know how easy it would be to take a razor and watch my life ebb out. I think about it constantly. I know if I screw up, I will wind up in the hospital. I do not want to wind up there again. So I have made a pact with myself, not to do it unless it gets so bad because if I miscalculate- the consequences is worse than death. The guy who wrote "Suicide is Painless", the theme song from MASH, had it wrong. It is painful.

I once had my stomach pumped. That was hell. No one said it hurts. On TV an overdose is treated as something glamorous. It does not hurt. Bullsheetrock. It hurts. Or if they cannot pump your stomach, they give you ipac- and you vomit for hours. Eventually you have nothing left in your system and you are still vomiting. For days afterwards with an OD you cannot eat. So they have you on an IV drip. And you cannot sleep because every 15 minutes a nurse comes by and pokes you and checks your eyes to make sure you are still with us. You have a heart monitor on. And the worst thing is, the doctors ignore you. They think you are selfish for doing what you did. You are taking up their valuable time when they can be helping someone else. And I cannot say I blame them. I feel ashamed and unclean by my stigma, by my illness. I know it's an imbalance on the brain, but I did not ask for it.

I wish I was normal. I look at friends and colleagues at work. They have spouses and children, and I have no one. I am going to grow old by myself. I am scared of that. That in itself is enough to make me wish to take my life.

But I know my moods will be hard for someone to live with. I know if I was a man, it would be easier for someone to put up with me, but in this society, men do not want to be caregivers. A man is not going to understand why I can write for 36 hours straight, breaking only to refill the glass of water by my right hand or to use the toilet. A man is not going to understand the urge I get at four in the morning to clean. Or worse, bake, or ride my bike. And someone, anyone will not understand the depression, the mind numbing, aching when its too painful to get out of the bed, to get dressed or talk. All you can do is cry. Fortunately the depression does not happen often, but when it does, its hard. Who wants to be around someone like that?
I don’t even know if I would want to be around me when this happens.

So here I am. A study in conflicts. On one hand, I hold down a professional, responsible job. I know if the company I worked for found out about this aliment, I could be sacked. I am a published author on the side. And on the other hand, right now I am acutely suicidal. I know I will not act on it , or I tell myself this. This aliment has caused me to be the black sheep of the family, I am not invited to any family events , weddings, funerals, etc because I was hospitalized. I was cut out of the family will on my second suicide attempt. This is all ignorance. I do not like people who are ignorant. What I have is no different than being a juvenile diabetic. It was something I was born with. I cannot change it.

All I can hope is there will be a med that I can use, so I can live a tolerant life. I want to be like everyone else.

And I want whoever should read this to know, you are not alone.

(Since I wrote this piece I lost my job, and have been ill from meds- as they try to find the right cocktail. I hope it will happen soon and I can get back to work).

For Dave, Whenever I May Find Him.

To my best friend in the entire universe, even though our paths will never cross again. I love you always and forever until I am simply dust and stuff of stars. Happy New Year mon cher ami.



You were the first person who believed in me and loved me.
Does the moon still shine on the Moors?
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