Sunday, September 26, 2010

schadenfreude? Rewritten. Revised


I was driving home from my parent's house and turned on the radio to get the weather report. Instead I got a minute of a talk show , the host on a rave about big pharma destroying our souls with their pills.

I've always thought this guy was a jerk, but every now and then someone, anyone gets it. Even a radio personality who I have never agreed with can shoot a fish in a barrel once in his lifetime.


Since I am almost off meds, just on 150 mg of Lithium, I can tell you honestly I am sleeping a bit better. 5 hours of sleep a night average. One night this week was nine hours and I thought I had died and gone to heaven. The humidity dropped a bit but it's still almost too hot to sleep. I want to get out of Dodge and move to Alaska, where it's cold and I might actually be able to catch some Z's.


My skin keeps acting like it's moulting. But it's not moulting, or even shedding. It itches constantly, and it's all on my back and neck. I can reach my neck, but I cannot reach the spot on my back. I've tried a back scratcher, I've rubbed up against walls, all to no avail. I've even put baby powder on it, which brings some relief until it wears off. Same with cold showers, and an exfoliating bath wash with my loofah.

What kills me now is the concept of schadenfreude. I never felt it personally until yesterday. I take referral calls from both my local mental health support group, and the state one. Usually they are pretty tame, when is the next meeting, how do I get there, where in NJ are the meetings, etc etc. I usually can answer the calls, or I refer them to NAMI. It's all good, NAMI refers their callers to me. Sometimes I get social workers and pdocs who are looking to get more help for their clients, and think a peer run group sounds great. Often the social workers will ask me about the types of training it takes to run a meeting, and again, I state that too.

But the woman I spoke to yesterday was different. I've spoken to many like her in the four years I have been doing this. A mother of a son in his twenties who was just diagnosed. Just started taking meds in February. He was having a hard time with side effects and developed ed. His girlfriend/fiance left him because of ed. He moved back home to his parents house, he was mopey, still grieving over the loss of what might have been and the fact that the meds were not only putting on weight, they had taken away his sexuality.

She asks if this is normal. I tell her I've seen my weight go up 50 lbs from different med cocktails since I was diagnosed back in 86. I am only 5 feet tall, so 50 lbs on me looks like 75 lbs on someone taller. I have had relationships end because of the illness. Either because I (and I am being candid here and I realize this may upset people and say you COULDN"T have been like that). I lost one boyfriend because I was hypersexual and wore him out. Yeah, it's true. I know most guys would love that , just as they wish for the four hour erections advertised on Viagra or Cialis. I've almost been engaged to someone who, finding out I was bipolar and it could be hereditary, dropped me, citing, he couldn't be responsible for a bipolar child. I've written here he said he could continue to fuck me, but marriage and relationship was off.

I can tell you it was the first time my heart was broken, and the pain hurt for months.

I can also tell you that my bipolar cost me my marriage. I don't like to talk about this in public, because I really don't believe in airring your dirty laundry in public. It takes two people to make a marriage, it should take two to end it. In my case, it didn't. While he accepted the fact I was a fellow Beeper, and embraced it!, he never could cope with it. My pdoc at the time sat down with him and told him I was one of the "sickest" bipolars he ever saw, and he didn't ever think I would be able to get off my meds and I would always suffer from things that didn't effect him ever, the hypersexuality, the suicidal ideation. He only took Depakote. I was on a med cocktail at that time of at least 4 or 5 different drugs.

I was a hero to my husband, i was working in a newsroom, doing all the grunt work for the reporters, and making a very good living at it. I was making a nice bit on the side by entertainment blogging, at one time I was considered one of the five best entertainment bloggers in the country. I was working on my third novel. He thought I would be able to keep my job, support him totally and we would live happily ever after. And at first, for the first 3 months it was fine. Every day we would ask each other if we had taken our meds. But then I started fllipping into mania, and it depressed him. Seeing him depressed depressed me, and I floated back to depression, mine worse than his because I would get suicidal ideation on top of it.


It wasn't anyone's fault, but it was a deal breaker. He could understand in theory what it was like to be bipolar, but living with one was not something he liked. He wouldn't go for marital counseling, he just felt I needed to try harder. Some days I couldn't get out of bed I was so blue, and he would get upset with me and not understand. Yet when he couldn't get out of bed, couldn't make his own writing deadlines, I would ghost write things for him, try to help him get out of the depression.

We grew apart as people do. Perhaps it was for the best, the marriage was concieved in mania and it was too fragile to last. The ironic part was when we met he was more in love with me than I him. I grew to love him more as his love for me faded. When he left I thought my world would end because at that time I loved him more than he did me.

Back to this lady. She asked how many meds I have been on and I replied I stopped counting at 30. She said she couldn't go through that with her son, is this normal? I told her I have met quite a number of people who have been on as many meds as me or more. I told her honestly, I had been in the hospital 4 times in 20 years, and have tried almost every type of therapy imaginable, Freudian, Jungian, Ericksonian, CBT,DBT, you name it I've tried it.

I've even tried ECT in a feeble attempt of living a semi normal and productive life.

"What a strong woman you are". She said. She got off the phone saying she would be there next Tuesday and could I talk to her son.


I've been hearing that a lot lately. I don't feel strong. I have done what needed to be done, but never thought it was anything remarkable. I had to learn to re use my muscles because I didn't want to wind up in a nursing home, hooked up to a catherter and unable to eat or dress myself at the ripe old age of 45. It wasn't anything wonderful or brave, it just WAS.

I take lithium because I don't want the kind of mood swings I would get if I didn't take it. It's not perfect but I would be rapid cycling and that's not livable.

I've dealt with crippling depression and suicide attempts, the last one came very close to succeeding. I am lucky. But what choice do I have? I can view my bipolar as either a blessing, a curse, or both. I don't feel extraordinary. I feel human. But I do feel like a fraud for someone to think I am inspirational, extraordinary. Maybe it's the depression talking.


All I know is last night, I couldn't sleep. I was upset about some things going on in my personal life, and kept dreaming the same dream, I was hanging from a tree, birds pecking out my eyes. I know why I was dreaming this, my last attempt, in November of 2002 was a hang, and as I lost Consciousness the rope broke. Had it not broke, I would not be here right now writing this. I know someone who has a gun, and I called him to see if I could borrow it. The old black dog had me by the short and curlies, saying he was boss of me.

I got so far as in my car to collect the gun, and tried to figure out if I would do the deed on my bed, or the couch. Would it look like a scene in Pulp Fiction? Could I really put gray matter and blood on my two favorite pictures? Over the couch hangs a framed print of Wheatfield with Crows by Van Gogh. The irony alone in that statement made me decide against it.

The painting over my bed is the famous Red Poppy print by Georgia O'Keefe, that they were selling right and left at the Met when her show was there. I always liked that print, even if it does look like a giant c**t.

I calmed down when I felt the air conditioning on my face and told myself my brain is playing tricks on me. Ignore the voices and you won't drown. You don't want to be like Prufrock, you want to be alive.

I went back to bed. Sleep did not come easy, but at least, as I counted each breath, I was grateful I didn't listen to the mermaids sing. Not this time.

Maybe I am stronger than I give myself credit for. Who knew?

10 comments:

Peace Be With You said...

"I do feel like a fraud for someone to think I am inspirational, extraordinary. Maybe it's the depression talking."

Yours or theirs? Sometimes I think the membranes establishing our separateness are only (forgive me)... skin deep.

Judy

Andrew said...

All the best to you Susan.

You are loved.

Lisa said...

Holy crap ~ your voice in this powerful piece jumped out and for a minute I thought I was talking to myself. I relate to your experience and feelings in more ways than you might know.

Thank you :)

Kristin said...

Love that you are back writing. Give the darkness over to light, let it all dissipate into fresh air.
I met hundred of people like the one you described whose mom called you while visiting my daughter in psych hospitals. Less drugs, more exercise, a better diet and support from people who do not label them would change the course of their lives dramatically. this is hard when drugs are introduced first and these other options are brought up after weight has been gained and the label has stuck hard to their forehead so that is all that they see when they open their eyes.
I hope that you are able to encourage all forms of healing when you get calls like the one that you got from that mom. I hope that you are helping people make informed choices. Sometimes a drugs needs to be taken to get symptoms under control/maintained but people are not going to know what is going to work outside of drug therapy unless they try it.
I am happy you are back, Susan.
xx

Ana said...

I think I didn't save:

My account was stolen
Please read it here:
http://hellaheaven-ana.blogspot.com/2010/09/someone-stole-my-account.html
Thank you.

Nice to have you back!

Red Pill Junkie said...

One of the common factors among heroes:

They don't see themselves as one.

The Depressed Reader said...

A great post. I'm glad you've been able to reduce your meds down to almost nothing. Mental illness is a tough cross to bear, but you've managed to endure it, endure the pain, the loss of relationships, the side effects of medication, and not only survive, but be of use to others who are going through tough times themselves.

You sound like a pretty strong woman to me!

Karen said...

I'm so glad I found you Susan. I've been looking for bloggers who blogged on mh and bipolar, but wasn't having any luck.

I was diagnosed 6 years ago with bipolar 1. I've been having major sleep problems too. What a total pain. I'd love to compare notes sometime!
By the way, I just started my blog--I'm so impressed that you have gotten so far in yours. :)

I'd love it if you could visit mine, just to pop in and say hello. The name of my blog is "Doing Life". I figured that, after cancer and mh and other crap, I'm gonna do life or die trying!
Karen
www.mydoinglife.blogspot.com

Jamie said...

Thanks for this. There is a lot I can relate to here. Gaining weight from the meds, not being able to get out of bed and having it anger people/spouses that don't understand, imagining my own suicide, trying to be strong when the world things I'm weak to even struggle.

It all sucks and you captured it beautifully. Thank you.

Syd said...

I am glad that you are still here.

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