Wednesday, August 4, 2010

Psychiatric Patients' Advocates Sue New Jersey

From the New York Times- August 4, 2010-

Patient advocates filed a federal lawsuit on Tuesday charging that New Jersey psychiatric hospitals routinely medicate patients against their will without a review by an outside arbiter, a practice that is banned in most other states.

Twenty-nine states require a judge’s ruling for involuntary medication, according to the suit, including New York, Connecticut and other large states, like California, Florida and Texas. Five other states leave the decision to an individual or panel outside the hospital. Some states also provide an advocate to represent a patient in a hearing on forced medication.
But in New Jersey, state rules allow a patient in a state hospital to appeal medication decisions only to people in the hospital. The lawsuit contends that the internal appeal process is routinely ignored and that psychiatric patients in private hospitals lack any opportunity to appeal medication regimens at all.
The suit, filed in Federal District Court in Trenton by the group Disability Rights New Jersey, seeks a court order requiring the state to provide judicial review of involuntary medication. It notes that a prison inmate has more power to contest treatment decisions than a psychiatric patient.
The drugs forced on patients include powerful medications for conditions like schizophrenia and bipolar disorder. They help many people with those diseases function better, but can have serious side effects, including diabetes, tremors, seizures, high blood pressure, obesity, sedation, aches and impaired mental function.
“As a patient in a state hospital, it’s your legal right to refuse and go through a process, but you get severely penalized if you try,” said W. Emmett Dwyer, litigation director of Disability Rights New Jersey, a federally financed organization. “They view you as noncompliant with treatment. They give you an injection instead of a pill. And they tell you if you don’t take it, you won’t get out.”
There are about 1,800 patients at any given time in New Jersey’s five state psychiatric hospitals, and 1,000 in private ones.
Michael D. Reisman, a lawyer with Kirkland & Ellis, which is helping bring the lawsuit, said recent records from one state hospital showed that fewer than 20 percent of patients contested their medication.
But the advocates and several former patients said many more objected to their prescriptions but submitted quietly, rather than risk painful injections or a longer hospital stay. Others, they said, are too medicated to object.
“When I said no, they just shot me up instead, so pretty soon I gave up,” said Alice Hsia, 34, who has been in and out of hospitals for schizophrenia. “The times I was sedated, I would sign anything they wanted.”
Mr. Reisman said the question often was not whether some medication was needed, but rather one of dosage or a desire to try a “different drug with fewer side effects.” Some hospital psychiatrists do not take such concerns seriously, he said, but “a judicial hearing would give the patient more leverage and force the doctors to listen.”
The State Department of Human Services, which runs the hospitals, declined to comment on the suit. But among advocates for the mentally ill, there are wide-ranging opinions on involuntary treatment.
Phil Lubitz, associate director of the National Alliance on Mental Illness of New Jersey, said he did not see forced medication as a major issue, noting that it was extremely difficult to get patients committed in New Jersey, and that most who were presented “a danger to themselves or others.”
But Robert Davison, executive director of the Mental Health Association of Essex County, called New Jersey’s policy “beneath contempt.”
“This state is way behind the times,” he said. “It suspends people’s civil rights without due process, and it’s troubled me for years.”
A few states require that the issue of involuntary medication be addressed when someone is being committed. More than 20 states require a separate hearing on the subject. There is no way to know how many patients in New Jersey would have their medications changed if there were an external review. But the advocates say a fundamental right is at stake.
The rest of the article is here.
Are you listening Senators Menendez and Lautenberg? Governor Christie? My congressman is Rush Holt. I'm going to his office at 9 am today. This is serious, folks. Please, if you live in NJ pick up a pen, call or write to you congressman, senator, or Governor Christie.  Tell NAMI they are wrong on this one. Do you want your beloved family member drugged against their will? How would you like it. 

The pen is mightier than the sword.  Get writing.
Eta: I added contacts for NJ Senators and Governor Christie

Monday, August 2, 2010

What is given, is also taken away

I am doing much better. With the new air conditioning, I am actually sleeping, right now only five hours a day but it's better than what I have been getting. The mania is receding on it's on like I knew it would, once I could sleep. Things are getting slowly better.

And of course the bad - the very bad, while I am getting stronger again, my dad is getting frail. In the last week he can no longer stand for more than a minute, his bones are very frail. He can barely walk- he can get off the bed to the bathroom and that is it. He can no longer sit for more than five or so minutes now.  The last three days he has been in bed, he cannot move out of it. He is in constant pain and the doctor has him on pain pills. His colon is also acting up again, and he needs the surgery but if he gets that he will die on the table.

So while I am getting stronger, my mother, sister and I are watching my father die.

The only good thing is I am strong enough to cope with it and grateful for any time i have with him. Writing here will be sporadic.  I am still writing, it's just longhand on paper.

I hope to be online soon and visiting blogs shortly.

ETA: I have been reading Alan Ginsburg's Kaddish tonight and thinking of the Circle of Life- hence, I added the Cheezeburger, it's one of my favorites.  It's really is all about the circle of life.
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