That's the question. The rub is- what is the correct answer?
Dave Stein in his blog posted that question yesterday. I've been thinking about this long and hard, and I've come up with the conclusion.
It depends on the individual. But this individual says no.
See, I'm not a doctor, I'm not trained in pharmacology. All I can tell you is I've taken almost 40 different psychiatric drugs in my lifetime. None of them worked - some did what they were supposed to and pooped out after about 3 months or so. Some of them gave me bad side effects after a couple of days. Some of them made me exorcist sick. A few gave me side effects like weight gain (up to 100 pounds) made my hair fall out, gave me stomach problems and GERD. These side effects were nothing compared to kidney failure, and nearly dying from tardive dyskinesia from Haldol. ECT made me loose my photographic memory- made me loose most of my memories and I lost my career because of it.
I will admit- the first year or two- the drug cocktail I was on made me feel better. Or maybe it didn't, but acted like a placebo to my brain. The doses got stronger and all of a sudden it just wasn't one drug I was on (lithium) but the doc said, add Prozac. I didn't tolerate Prozac that lead to six months on Zoloft and then a change to Paxil after another six months. Then all the other medications were tried with the lithium. After six years with one doctor, I got a new one- who changed out the lithium for Depakote. That's when the weight issues came in. I went from 105 pounds to over 200. Depakote was stopped, back to lithium. And so and on so on. And my weight over the years cycled from a low at 140 (which was 30-35 pounds overweight) to at one time a whopping 210 at my heaviest. (To give you an idea, I am five feet and one sixteenth of an inch tall, and should weigh between 100-110 lbs).
Every time i would complain about a side effect, doctors gave me pills for the side effects. Stomach issues- I was told to take Maalox or Pepto. I got to carrying around Maalox tablets with me at all times. I couldn't sleep, I was given something to make me sleep. I couldn't wake up, I was given a pill for that. I was given Meredia for diet pills. My hair fell out on three different occasions- I was given slips to buy wigs and scripts for Rogaine. I became anemic- I had to take iron pills. Then my white blood count started going haywire, until it's been hovering right at a number just below the number for leukemia. I started to hear voices, I was given a pill for that. I've been up to 11 different meds at one time- not all psychiatric.
And let's put this on the table, before I was "diagnosed" the only health issues i had besides the normal childhood illnesses, were painful menstrual cramps.
Today I am currently on Clonidine, Amlodipine, Bethanechol, Colace, Lasix. I take Tramadol for pain. I'm not on any psych drugs, much to my mother's chagrin, because of the kidney failure. I suffer from agoraphobia- brought on from the drugs I suspect. I've never had that. I have edema in my legs and feet, and cannot walk without a walker. I totally cannot think for myself, I have to make lists of everything to do. I have a little bit of my memory back, it took over 8 years after the ECT to get any of it back. I cannot tolerate heat, my apartment stays at 62 year round. Any higher and I get sick from heat. In the winter I would keep the thermostat lower but my landlord says I have to keep it at 62 or the pipes will freeze. My ideal climate would be in the North Pole in an ice house, year round.
I know on the internet, for every one person that is pro meds, there is another that is anti meds. Like I said, I am not a physician. What I will say, as I look at my life, I rue the day I ever took my first psychiatric pill. In hindsight, I would have been sufficed best by talk therapy.
What I wish is that the doctors I saw had listened to me when I complained about side effects to my medication. I wish they knew about weaning off one drug before starting another. Instead they told me to go off cold turkey from one med, try another, and were never with me when I was adjusting to one while going off another. I learned to live in the bathroom for days- never knowing if I had to put which end on the toilet. I had shakes worse than the shakes I got from drinking.
If you are taking any meds, and have side effects call your doctor immediately. Don't let them marginalize any side effects. Any and all side effects should be brought up. Don't let a doctor condescend to you. Look up your prescriptions on the internet. Read all you can and talk to your doctor about the drug(s) he or she wants to put you on. Question everything.
I'm taking the high road here. I cannot tell you to med or not to med. All I can do is tell you, in hindsight, they didn't work for me, they made me sick and gave me side effects that were horrible. I wouldn't do it again. But if you are reading this and feel the meds are saving your life, good. But please, please, the minute they start making you feel wonky and sick, call the doc immediately. If your doctor doesn't listen to you, get another doctor. Your life is important, and loosing your life from meds or from their side effects stinks. Arming yourself with knowledge can and will save your life.
And in the end, that's all you have. Your life and your health. When your health is gone, so is your life. Take that tip from me. I celebrated my birthday last week, my biggest fear is I won't celebrate next year's one.
Showing posts with label ECT. Show all posts
Showing posts with label ECT. Show all posts
Wednesday, September 14, 2011
Monday, September 5, 2011
Break the Silence on Mental Illness-September 24
Today, Shock Girl tells us how we can break the silence on mental illness. Do your part to raise awareness. Please consider attending this important event, on September 24. Thank you.
Hat tip to Nami Dearest
Hat tip to Nami Dearest
Wednesday, April 14, 2010
When I Was First Diagnosed-Repost/Rewrite
I was almost 23. I just finished school and was supposed to start a PhD program in the fall. My life was spinning out of control, I was completely in the thrall of full blown mania. I had over 70 graduate credits under my belt and for the last three years all I had been doing is working on two Master's degrees at the same time, while being a teacher's assistant, tutoring writing and history in the learning lab, cleaning houses and teaching sunday school. In the summer I took classes, lived on campus as a Residence assistant, and taught and tutored SAT prep off campus. I was treated as a peer in my department, and if they saw anything suspect, which some of them did, they just wrote it off to me being ultra creative and one of the budding geniuses they ever saw. Several professors were mentoring me as a protege, and all of them saw me finishing the PhD by the time I was 25, landing a job at some college or university and writing and publishing and teaching. And that was what I wanted for my future too. I had just finished my first novel, and was happy. A major publishing house wanted to publish it. Looking back, the only time in my life that I was ever happy, truly happy was when I was in school. Only one professor, said to me "You're the next Sylvia Plath. You will be a suicide too by the time you are 33".
Yeah, right, I told him. Right along with Anne Sexton and John Berryman.
Then, that April my life started spinning out of control. By the end of the semester, I threw down my dissertation on the English Chair's desk and went back to the apartment I shared off campus with a female roomate and her fiance. And slept for several days straight, waking only to use the toilet. I hadn't been depressed before, never like this. Maybe it was residual from the rape the month before. Though I had thought about suicide before, I never attempted. Not really. At least I hadn't thought so at the time.
I had Tylenol, 50 pills, downing it with a bottle of ice cold vodka and OJ. Gagged a lot, and semi regurgitated, but kept going until the entire bottle was finshed. I washed the glass I had used, put it on the drain board, and tucked myself into bed, with my teddy bear. And fell asleep.
Woke up in the Emergency room of the hospital. The guy I was semi- dating at the time found me, unconscious and unresponsive. Apparently he called an ambulance and I had my stomach pumped. He stayed with me the entire time, but when the admitting doctor told me I *HAD* to go to the psychiatric hospital, he stared down in my blue eyes and told me he could no longer date me, now that I was about to be labeled "crazy" and going to the "nut house", I could keep f***ing him, but we were finished as a couple. This was the first but not the last of the boyfriends I lost because of my illness.
The first doctor in the hospital diagnosed me as unipolar- he was just dealing with the suicide attempt. He put me on Prozac, which had to be stopped after a few days because I literally felt I was crawling out of my skin.
The second doc I saw actually spent time with me and asked the right questions. And then I heard it. Manic Depression. He sugar coated it by calling it Van Gogh's disease. Maybe this would help amielorate the blow must of thought, knowing how much I adore Van Gogh. I don't know. Eventually Manic Depression was out and Bipolar was in. Now I was Bipolar 1.
I never accepted it, though I knew in my heart I was, my brain didn't want to accept it. I took my lithium like a good girl, and did the mandatory blood work required by the doc. And I went through all the other meds I went on, not questioning, just taking because part of me thought if I took these meds it would go away and I would be normal. I would have a normal life and live happy. if I just took the meds and ignored the diagnosis, I would be normal, and my life would be normal. I was the perfect consumer. I didn't question the pills, didn't investigate them, and even though most of them gave me terrible side effects I kept taking them because I just wanted to be normal and thought this would let me lead the life I was meant to live.
My family didn't accept it either, my father telling me to buck up, and try harder. My mother just told me to take the meds, go to the shrink and go to work, and in my spare time date. I got to be quite good at dating, mastering the art of the blind date. But I just didn't feel normal. The meds left me weak, gave me the runs constantly. They never told anyone else there was anything "wrong" with me, and I know this caused a rift in their marriage, my mother believing the meds and hospital stays and much later, ECT would cure me, my father saying there was nothing wrong with me that hard work couldn't cure and I didn't need meds.
And it didn't work that way. All the meds, all the different shrinks, other stays at the hospital, even ECT trying to bring me back to normal. I've lost jobs, lost countless relationships. It's always been the same. Good enough to F**K, never good enough to have children with, should they wind up like me. I tried to ease the hole in my heart and soul by food, but that didn't work. Alcohol made me comfortably numb like nothing else could, but it's been almost 14 years since my last drink.
So here I am struggling. The last year I've had to go a complete overhaul with the med cocktail and at one time I was on 9 different meds in my cocktail at the same time. This past two years alone, I've gone through two psychiatric hospitalizations, one regular hospitalization and one rehabilitation hospitalization from this illness. It's cost me the last year of my life.
All I have is my writing and my cat. I know I will never have a family of my own, or children from my body. I can deal with that, and I am accepting it, but I get so lonely sometimes. Some nights it is so unbearable I just lie in bed with the thought I need to hold and be held so bad I don't think I will make it til the dawn. I don't think I will ever have a relationship with a man again, I have friends who are men, but to have one that I can live with and grow old with, I think that will escape me, much to my chagrin and heart ache.
This illness may have robbed me of a life, but it won't rob me of ME. It won't destroy my soul. I came into this world half dead, backwards, kicking and screaming. That's how I want to leave it. Kicking and screaming, putting up a good fight.
Sunday, August 9, 2009
Abolish Electroshock
This is normally not a political blog- but the one thing i am outspoken on is Electroshock Therapy, or ECT. In a nutshell, it did a big number on me, and based on my experiences, and what i know now about it, i wouldn't wish it on my worst enemy.
Mary Maddock, of Mind Freedom International, has a petition to abolish electroshock. The petition is here. If this is something you believe in, please sign.
A piece I wrote earlier on ECT is here.
Mary Maddock, of Mind Freedom International, has a petition to abolish electroshock. The petition is here. If this is something you believe in, please sign.
A piece I wrote earlier on ECT is here.
Saturday, January 3, 2009
Have truer words ever been spoken?
The loneliness and sad ache is overwhelming tonight. i don't feel alive, yet again, I feel like I don't belong to my body, mind or soul. Urge to put my hand through the mirror to see if I can get into a parallel universe.
Then I found this quote. Have truer words ever been spoken?
Brilliant! And yes, this is what they do to you when you get it. It's been 6 years, six long years and I still cannot read!
I have tried for the last ten minutes to post this You Tube video. It's not working. Heroin by Lou Reed and the Velvet Underground. The first song by Lou Reed I ever heard. One of the best guitars along with vintage Clapton and Duane Allman.
Then I found this quote. Have truer words ever been spoken?
They put the thing down your throat so you don't swallow your tongue, and they put electrodes on your head. That's what was recommended in Rockland County to discourage homosexual feelings. The effect is that you lose your memory and become a vegetable. You can't read a book because you get to page seventeen and have to go right back to page one again-Lou Reed
Brilliant! And yes, this is what they do to you when you get it. It's been 6 years, six long years and I still cannot read!
I have tried for the last ten minutes to post this You Tube video. It's not working. Heroin by Lou Reed and the Velvet Underground. The first song by Lou Reed I ever heard. One of the best guitars along with vintage Clapton and Duane Allman.
Tuesday, December 9, 2008
ECT Redux
I got a letter from someone who asked me my views on ECT, regarding my posts on Ray Sanford.
It's simple. If you are an adult, and you want it, fine. Have it. If you don't you shouldn't have it, nor should you be forced into it.
My thoughts on it were first posted here, and on this blog, here. The piece was originally written at the request of Philip Dawdy, who wanted a companion piece to this piece he wrote on ECT a few days before.
Again, like I said in the piece, if you want it, fine. If you don't - it shouldn't be forced on you. My own experience is simply this. i was semi if not totally catatonic, when I was admitted to a mental hospital. I don't want to name the hospital, but it is the same one where Godel died. I was brought in by work with an ultimatum- I had almost suicided the previous day, and I went into work the next day wearing pancake makeup and a turtleneck. I thought I was a good actress, but I was called down by HR shortly and told if I was not admitted "voluntarily" to the emergency room for valuation within the next 24 hours, I would be sacked.
I did not want to be sacked! So I went the next day with my mother to the emergency room, after dropping the cat at the kennel. And spent 30 days there, the entire time on suicide watch- one on one.
I was extremely suicidal, yes, that is true. The meds were being put it me at high does, and I was getting more and more suicidal, alternating between wanting to die, and catatonic episodes. 20 days into the hospitalization, the doctors decided that the only thing would make me better was ECT and they did a very good PR job explaining it to my parents and convincing them I needed this. I was too out of it to have an opinion. I remember calling my ex, and asking him what i should do.
I had 6 rounds of ECT. The first one had complications- I felt every muscle in my body for about 48 hours after the first treatment, but no problems with my memory. After the second treatment I had to get a PIC line put in because the nurse could not find a vein on the second try. I started loosing memory from the second treatment on. By the end of the sixth, I signed off on the procedure. I had a treatment on Christmas Eve morning and Boxing Day. My next scheduled procedure was supposed to be on Dec 30. The doctor, who was voted the best psychiatrist by NJ Magazine, a year later- was adamant I should not stop- and if I did, he would not be responsible if I suicided. I told him as someone who has read Philosophy- and Existentialism, it was my right if i want to die by my own hand, and he should respect that.
So there it is in a nutshell. Mindfreedom is behind Mr. Stanford, as I am, because no one should have this forced on them if they don't want it. But if you want it, it's your right. And I support you on that. Just keep in mind, for every positive experience I have heard on this procedure I have also heard a negative. And a 50/50 shot on any medical procedure, I don't want to take that risk.
It's simple. If you are an adult, and you want it, fine. Have it. If you don't you shouldn't have it, nor should you be forced into it.
My thoughts on it were first posted here, and on this blog, here. The piece was originally written at the request of Philip Dawdy, who wanted a companion piece to this piece he wrote on ECT a few days before.
Again, like I said in the piece, if you want it, fine. If you don't - it shouldn't be forced on you. My own experience is simply this. i was semi if not totally catatonic, when I was admitted to a mental hospital. I don't want to name the hospital, but it is the same one where Godel died. I was brought in by work with an ultimatum- I had almost suicided the previous day, and I went into work the next day wearing pancake makeup and a turtleneck. I thought I was a good actress, but I was called down by HR shortly and told if I was not admitted "voluntarily" to the emergency room for valuation within the next 24 hours, I would be sacked.
I did not want to be sacked! So I went the next day with my mother to the emergency room, after dropping the cat at the kennel. And spent 30 days there, the entire time on suicide watch- one on one.
I was extremely suicidal, yes, that is true. The meds were being put it me at high does, and I was getting more and more suicidal, alternating between wanting to die, and catatonic episodes. 20 days into the hospitalization, the doctors decided that the only thing would make me better was ECT and they did a very good PR job explaining it to my parents and convincing them I needed this. I was too out of it to have an opinion. I remember calling my ex, and asking him what i should do.
I had 6 rounds of ECT. The first one had complications- I felt every muscle in my body for about 48 hours after the first treatment, but no problems with my memory. After the second treatment I had to get a PIC line put in because the nurse could not find a vein on the second try. I started loosing memory from the second treatment on. By the end of the sixth, I signed off on the procedure. I had a treatment on Christmas Eve morning and Boxing Day. My next scheduled procedure was supposed to be on Dec 30. The doctor, who was voted the best psychiatrist by NJ Magazine, a year later- was adamant I should not stop- and if I did, he would not be responsible if I suicided. I told him as someone who has read Philosophy- and Existentialism, it was my right if i want to die by my own hand, and he should respect that.
So there it is in a nutshell. Mindfreedom is behind Mr. Stanford, as I am, because no one should have this forced on them if they don't want it. But if you want it, it's your right. And I support you on that. Just keep in mind, for every positive experience I have heard on this procedure I have also heard a negative. And a 50/50 shot on any medical procedure, I don't want to take that risk.
Monday, December 8, 2008
On Human Rights Day, Ray will be getting forced ECT
Ray's Next Scheduled Involuntary Outpatient Electroshock is:
10 December -- International Human Rights Day!
by David W. Oaks, Executive Director, MindFreedom International
This Wednesday, 10 December 2008, human rights activists all over the
world will be celebrating the 60th anniversary of the signing of the
United Nations Universal Declaration of Human Rights.
10 December is the UN's official International Human Rights Day.
10 December is also the day that Ray Sandford is scheduled to receive
his 35th involuntary outpatient electroshock.
NEW ON WEB: Learn Ray's story -- Frequently Asked Questions About Ray
Sandford Campaign, click here:
http://www.mindfreedom.org/shield/ray/sandford-faq
~~~~~~~~~~~~~~
Latest News on Ray Campaign
Unless action is taken swiftly, then this Wednesday morning, as he
has been for most mornings in the last few months, Ray will be
awakened early by staff in his room at the group residence Victory
House near Minneapolis.
Once more an escort will bring him against his will the 15 miles to
Mercy Hospital, where once more -- under court order -- doctors will
place electrodes on his head for another electroconvulsive therapy
(ECT), or electroshock, that can and has wiped out precious memories
and cognitive abilities from Ray.
~~~~~~~~~~~~~~
The Good News About Ray Campaign:
Because of MindFreedom's campaign to support Ray Sandford:
* The Minnesota Governor's office reports receiving "hundreds" of
complaints. Thank you everyone!
* Three agencies are now working to replace Ray's non-responsive
court-appointed attorney with a new attorney.
* National media has finally interviewed Ray for an upcoming broadcast.
The Bad News: It is Not Enough! Speak Out Now!
~~~~~~~~~~~~~~
** ACTION ** ACTION ** ACTION **
It is time to take the Ray Campaign up a notch, peacefully but strongly!
Let this become a top issue in the Governor's office.
Telephone Governor Pawlenty's office *NOW*:
Call any day, but especially call *before* Ray's scheduled
electroshock next Wednesday, 10 December 2008.
Call from anywhere in the world phone (651) 296-3391.
From inside Minnesota phone toll free (800) 657-3717.
You have the best chance of reaching staff from 8:00 am to 4:30 pm
Central Time weekdays.
~~~~~~~~~~~~~~
WHY WON'T GOVERNOR PAWLENTY REPLY? Find out! Ask!
Minnesota Governor Tim Pawlenty has completely stone-walled!
* His office refuses to issue any statement on the policy of forced
electroshock.
* He claims he can do nothing, that the courts are in charge, when he
could at least make sure Ray gets better legal representation for a
stay or appeal.
* His office operators have been instructed to immediately redirect
calls about Ray into a voice mail. No one we know of has ever heard
back. Some operators have hung up on callers.
* Meanwhile, the Governor is sponsoring a $200-a-head luxury hotel
conference about International Human Rights Day!
It is time to get creative!
* Ray will not give up!
* We will not give up!
* Don't you give up!
Please be peaceful, but be CREATIVELY MALADJUSTED in your next
phone calls to Governor Pawlenty's office.
First, get the name of the operator and write it down. Then start by
asking polite but firm questions about advocacy...
* about citizen input...
* about who to talk to about mental health policy...
* about the names and phone numbers of the Ombudsman office
* about mental health policy and the mental health division...
* about how poor people can have adequate legal representation...
And only then ask about why the Governor is refusing to speak out
about Involuntary Outpatient Electroshock (IOE)?
Insist on speaking to a live real person about this issue.
If you do not get a real person with a real reply, CALL BACK.
If an operator hangs up on you, call back and ask to speak to a
manager and complain.
~~~~~~~~~~~~~~
REMEMBER:
Telephone Governor Pawlenty's office *NOW*:
Call any day, but especially call *before* Ray's scheduled
electroshock next Wednesday, 10 December 2008.
Call from anywhere in the world phone (651) 296-3391.
From inside Minnesota phone toll free (800) 657-3717.
You have the best chance of reaching staff from 8:00 am to 4:30 pm
Central Time weekdays.
If you do receive any helpful information or leads, e-mail it to news-
at-mindfreedom.org.
~~~~~~~~~~~~~~
Learn more about Ray on the all-new "Frequently Asked Questions"
page about the Ray Campaign.
Learn about:
* The back story about Ray.
* How MindFreedom filed an official torture complaint about the State
of Minnesota to the United Nations.
* And what else you can do to help.
Click on the Frequently Asked Questions page here:
~~~~~~~~~~~~~~
A clickable version of above Ray Alert 5 is on web here:
http://www.mindfreedom.org/shield/ray/alert-5-sandford
~~~~~~~~~~~~~~
Get Around the Media Blackout! Forward this human rights alert to
all people who care about human rights, on and off the Internet!
~~~~~~~~~~~~~~
Encourage Everyone to Join MindFreedom International During the Fall
2008 Support Drive
Build the people power it will take to stop the kind of torture that
Ray is experiencing!
For information about how you can join MindFreedom today, click here:
http://www.mindfreedom.org/join-donate
~~~~~~~~~~
MindFreedom International Office:
454 Willamette, Suite 216 - POB 11284; Eugene, OR 97440-3484 USA
web site: http://www.mindfreedom.org
e-mail: office@mindfreedom.org
MFI member services phone: (541) 345-9106
MFI member services toll free: 1-877-MAD-PRIDe or 1-877-623-7743
new fax: (480) 287-8833
10 December -- International Human Rights Day!
by David W. Oaks, Executive Director, MindFreedom International
This Wednesday, 10 December 2008, human rights activists all over the
world will be celebrating the 60th anniversary of the signing of the
United Nations Universal Declaration of Human Rights.
10 December is the UN's official International Human Rights Day.
10 December is also the day that Ray Sandford is scheduled to receive
his 35th involuntary outpatient electroshock.
NEW ON WEB: Learn Ray's story -- Frequently Asked Questions About Ray
Sandford Campaign, click here:
http://www.mindfreedom.org/shield/ray/sandford-faq
~~~~~~~~~~~~~~
Latest News on Ray Campaign
Unless action is taken swiftly, then this Wednesday morning, as he
has been for most mornings in the last few months, Ray will be
awakened early by staff in his room at the group residence Victory
House near Minneapolis.
Once more an escort will bring him against his will the 15 miles to
Mercy Hospital, where once more -- under court order -- doctors will
place electrodes on his head for another electroconvulsive therapy
(ECT), or electroshock, that can and has wiped out precious memories
and cognitive abilities from Ray.
~~~~~~~~~~~~~~
The Good News About Ray Campaign:
Because of MindFreedom's campaign to support Ray Sandford:
* The Minnesota Governor's office reports receiving "hundreds" of
complaints. Thank you everyone!
* Three agencies are now working to replace Ray's non-responsive
court-appointed attorney with a new attorney.
* National media has finally interviewed Ray for an upcoming broadcast.
The Bad News: It is Not Enough! Speak Out Now!
~~~~~~~~~~~~~~
** ACTION ** ACTION ** ACTION **
It is time to take the Ray Campaign up a notch, peacefully but strongly!
Let this become a top issue in the Governor's office.
Telephone Governor Pawlenty's office *NOW*:
Call any day, but especially call *before* Ray's scheduled
electroshock next Wednesday, 10 December 2008.
Call from anywhere in the world phone (651) 296-3391.
From inside Minnesota phone toll free (800) 657-3717.
You have the best chance of reaching staff from 8:00 am to 4:30 pm
Central Time weekdays.
~~~~~~~~~~~~~~
WHY WON'T GOVERNOR PAWLENTY REPLY? Find out! Ask!
Minnesota Governor Tim Pawlenty has completely stone-walled!
* His office refuses to issue any statement on the policy of forced
electroshock.
* He claims he can do nothing, that the courts are in charge, when he
could at least make sure Ray gets better legal representation for a
stay or appeal.
* His office operators have been instructed to immediately redirect
calls about Ray into a voice mail. No one we know of has ever heard
back. Some operators have hung up on callers.
* Meanwhile, the Governor is sponsoring a $200-a-head luxury hotel
conference about International Human Rights Day!
It is time to get creative!
* Ray will not give up!
* We will not give up!
* Don't you give up!
Please be peaceful, but be CREATIVELY MALADJUSTED in your next
phone calls to Governor Pawlenty's office.
First, get the name of the operator and write it down. Then start by
asking polite but firm questions about advocacy...
* about citizen input...
* about who to talk to about mental health policy...
* about the names and phone numbers of the Ombudsman office
* about mental health policy and the mental health division...
* about how poor people can have adequate legal representation...
And only then ask about why the Governor is refusing to speak out
about Involuntary Outpatient Electroshock (IOE)?
Insist on speaking to a live real person about this issue.
If you do not get a real person with a real reply, CALL BACK.
If an operator hangs up on you, call back and ask to speak to a
manager and complain.
~~~~~~~~~~~~~~
REMEMBER:
Telephone Governor Pawlenty's office *NOW*:
Call any day, but especially call *before* Ray's scheduled
electroshock next Wednesday, 10 December 2008.
Call from anywhere in the world phone (651) 296-3391.
From inside Minnesota phone toll free (800) 657-3717.
You have the best chance of reaching staff from 8:00 am to 4:30 pm
Central Time weekdays.
If you do receive any helpful information or leads, e-mail it to news-
at-mindfreedom.org.
~~~~~~~~~~~~~~
Learn more about Ray on the all-new "Frequently Asked Questions"
page about the Ray Campaign.
Learn about:
* The back story about Ray.
* How MindFreedom filed an official torture complaint about the State
of Minnesota to the United Nations.
* And what else you can do to help.
Click on the Frequently Asked Questions page here:
~~~~~~~~~~~~~~
A clickable version of above Ray Alert 5 is on web here:
http://www.mindfreedom.org/shield/ray/alert-5-sandford
~~~~~~~~~~~~~~
Get Around the Media Blackout! Forward this human rights alert to
all people who care about human rights, on and off the Internet!
~~~~~~~~~~~~~~
Encourage Everyone to Join MindFreedom International During the Fall
2008 Support Drive
Build the people power it will take to stop the kind of torture that
Ray is experiencing!
For information about how you can join MindFreedom today, click here:
http://www.mindfreedom.org/join-donate
~~~~~~~~~~
MindFreedom International Office:
454 Willamette, Suite 216 - POB 11284; Eugene, OR 97440-3484 USA
web site: http://www.mindfreedom.org
e-mail: office@mindfreedom.org
MFI member services phone: (541) 345-9106
MFI member services toll free: 1-877-MAD-PRIDe or 1-877-623-7743
new fax: (480) 287-8833
Wednesday, November 19, 2008
Amazing people who wrote for Ray Sandford

Ray Sandford, a resident of Minnesota, has been getting ECT. He does not want this procedure and is fighting it, along with the kind people at Mind Freedom, and the bloggers of the Internet.
These letters were just posted on the Mind Freedom Website.
My views on ECT are as follows. I had it done, against my will. If you want to have it done, fine. If you don't, you shouldn't. ECT caused a lot of damage to my brain, to my memory, to my life. I wouldn't wish this procedure on my worst enemy.
Take a look to read these letters, and thanks to all who wrote in behalf of Ray. Lets hope he never has another round of this again.
http://www.mindfreedom.org/shield/ray/sandford-support-letters/
ETA: Mind Freedom has been added to my blog roll.
Monday, November 17, 2008
Ray Sandford-Alert 3
I would like to thank Marian, the webmistress of :"Different Thoughts" for the update. Her insightful blog is on my blogroll.
MindFreedom International - 16 November 2008
Ray Human Rights Alert #3: Please Forward
Now see a photo of Ray here:
http://www.mindfreedom.org/shield/ray
Media ought to ask, "What is Minnesota Governor Pawlenty's
position on Involuntary Outpatient Electroshock (IOE)?"
Ray gets a one week reprieve.
First the good news.
Within days of MindFreedom launching its campaign on 7 November 2008
to stop the weekly involuntary outpatient electroshock of Ray
Sandford, his doctor has decided to "skip a Wednesday."
Ray says that this coming Wednesday, 19 November 2008, for the first
time in months, Ray will not be escorted against his will, under
court order, from his Minnesota home out in the community to his 34th
involuntary outpatient electroshock.
So there's a reprieve for Ray.
For one week.
The bad news is that Ray's doctor said Ray's forced outpatient
electroshocks will resume on Wednesday, 26 November 2008, the day
before the USA holiday of Thanksgiving.
Ray said his involuntary shock will then continue every other week.
We don't know if the one-week reprieve is because of the MindFreedom
campaign, but we know MindFreedom News readers are having an impact.
Since the MindFreedom first alert went out nine days ago, on 7
November 2008:
*** Many people from all over the world have e-mailed and phoned
the offices of the Governor of Minnesota, along with social service
agencies, media, and the hospital where Ray receives his electroshock
against his expressed wishes.
*** For the first time, thousands of people are now aware of the
existence of IOE -- Involuntary Outpatient Electroshock.
*** A few national and local media are now actively investigating.
*** Several advocacy agencies and human rights organizations are
expressing concern and getting involved.
*** Several volunteer attorneys are now in touch to provide
assistance.
*** Volunteers are visiting Ray and sending him their support,
and Ray tells us he is grateful. One volunteer took the photo of Ray
shown on the web version of this alert:
http://www.mindfreedom.org/shield/ray
*** MindFreedom's "Zapback" e-mail list is coordinating the
campaign.
*** A disability professor and her class of students have called
up Ray and are taking on his campaign as a project.
*** And more.
Thank you, everyone.
Keep up the pressure and the support!
KEEP IT UP!
First, keep phoning and e-mailing, especially if you have not so far.
Show there is national and international concern!
Here are the links to the original two MindFreedom alerts, which have
information about how to e-mail and phone the Governor of Minnesota,
and how to write or visit Ray:
7 Nov: Alert #1:
http://www.mindfreedom.org/shield/ray-sandford
12 Nov: Alert #2 - Governor Phone-In Campaign:
http://www.mindfreedom.org/shield/pawlenty-electroshock
16 Nov: Alert #3 - Link to this alert with photo of Ray:
http://www.mindfreedom.org/shield/ray
SOLVE A MYSTERY!
Second, help MindFreedom answer the main mystery.
Despite all this public interest the question remains, "What is
Governor Pawlenty's position on Minnesota laws allowing involuntary
outpatient electroshock?"
Is this Governor, who campaigns for "limited government," for such
laws or against them?
Unfortunately, the Governor's office has not responded to any of the
many e-mails or phone calls requesting his policy position. The
Governor's office is immediately forwarding citizen inquiries to a
voice mail, and then not replying to the voice mail.
We need media to ask the Governor for us. Please forward this alert
to all media, small and large, from newspapers to bloggers.
Media can direct questions to:
Brian McClung
Director of Communications for Minnesota's Governor
phone: (651) 296-0001.
Media ought to ask, "What is Governor Pawlenty's position on
Minnesota laws allowing involuntary outpatient electroshock?"
Sometimes the Governor's office is re-directing calls to the
Minnesota Department of Human Rights. At first that sounds good. But
this office says it is only focused on determining whether narrow
discrimination complaints are legally valid. A spokesperson said this
department makes no statements about policy.
This Minnesota agency said they are planning a major one-day human
rights conference and forum on 5 December. One barrier is the "forum"
costs $200.
For information on this Minn. Dept. of Human Rights, and their
"forum," click here:
http://www.mindfreedom.org/shield/ray/minnesota-human-rights-conference
or use this link:
http://tinyurl.com/mn-human-rights
You can also keep up with some of the latest developments about the
Ray Campaign on the MindFreedom blog by MindFreedom director David
Oaks, here:
http://www.mindfreedom.org/mfi-blog
Disclaimer: Because the State of Minnesota won't reply, portions of
these alerts are based on Ray's personal statements. By Ray's own
admission, he now has severe memory problems. Therefore, journalists
may want to find a second source to confirm accuracy.
Wednesday, November 12, 2008
Call to Action:Telephone Gov Pawlenty, MN, on Wed
I want to thank Stan, from the amazing blog, "Is Something Not Quite Right with Stan" for this Hat Tip! (There is a link to his blog on my blogroll).
Ray Sandford & MindFreedom: Call to Action: Telephone Governor Pawlenty on Wednesdays
MindFreedom has a call to action to telephone Minnesota Governor Pawlenty every day and ask these questions regarding the forced ECT treatment of outpatient Ray Sandford:
"Action: Telephone Governor Pawlenty's office now: From anywhere in the world phone (651) 296-3391. From inside Minnesota phone toll free: (800) 657-3717.You can leave a message at any time. You can reach staff any non-holiday weekday from 8:00 am to 4:30 pm Central Time.Call any day, but especially call on Wednesdays.
Be polite but be firm and persistent. Ask one or more of these questions:
1. Does the Governor support Minnesota laws allowing involuntary outpatient electroshock?
2. Is the Governor aware that some Minnesota citizens are being escorted from their homes using court orders to receive involuntary electroshock?
3. How many Minnesota residents receive electroshock against their wishes, as either an inpatient our outpatient?
4. Who collects this data?
5. How is this data reported to the public?
And if you have any doubts about this campaign, go ahead and ask,
6. "Are reports on the Internet true that some Minnesota residents receive electroshock involuntarily on an outpatient basis?"
You may be directed to another department such as Human Rights. Do not give up. Keep asking. If you do not get a return call soon, call back to complain.If you do receive any helpful information, e-mail it to news@mindfreedom.org.
UPDATE 10:43 am Pacific Time: Staff in several offices is definitely aware of this campaign.
Phone calls to Governor now mainly seem to be re-directed to a voice mail. Please leave a clear message and ASK FOR A CALL BACK. If you do NOT get a call back in a day or two, please phone again asking for a call back.
I urge every Mental Health Blogger that believes forced ECT is Wrong and Inhumane to copy and paste this article to their site.
Thank you,
Stan
Saturday, November 8, 2008
Action Alert- Stop the forced ECT of a man in MN
MindFreedom International — 7 November 2008
Human Rights Alert: Involuntary Electroshock
please forward
If it’s Wednesday, then Ray Sandford is Getting Escorted from His Home for Another Forced Electroshock
Minnesota Resident Gets Involuntary Electroconvulsive Therapy (ECT) On A Weekly Ongoing *Outpatient* Basis
ACTION: How You Can Easily E-mail Minnesota Governor
by David W. Oaks, Director, MindFreedom International
The past Wednesday morning after the historic USA election what were you doing?
I know what Ray Sandford, 54, was doing.
Each and every Wednesday, early in the morning, staff shows up at Ray’s sheltered living home called Victory House in Columbia Heights, Minnesota, adjacent to Minneapolis.
Staff escorts Ray the 15 miles to Mercy Hospital.
There, Ray is given another of his weekly electroconvulsive therapy (ECT) treatments, also known as electroshock. All against his will. On an outpatient basis.
And it’s been going on for months.
Ray says the weekly forced electroshocks are “scary as hell.” He absolutely opposes having the procedure. He says it’s causing poor memory for names such as of friends and his favorite niece. “What am I supposed to do, run away?” Instead, Ray phoned his local library’s reference desk to ask about human rights groups, and the librarian referred him to MindFreedom International.
Ray called me at our office here at MindFreedom International about two weeks ago. At first I wasn’t sure I believed him.
Of course, MindFreedom International has documented proven cases of electroshock against the expressed wishes of the subject all over the world, including in the USA. MindFreedom succeeded in having the United Nations World Health Organization call in writing for a global ban on all involuntary electroshock.
But this is the first time I’ve been on the phone with someone getting court-ordered forced shock while living out in the community, on an outpatient basis.
This is the ultimate double whammy.
I confirmed Ray’s story by calling two staff at Victory House as well as his court-appointed conservator, Tonya Wilhelm of Luthern Support Services of Minnesota.
Ms. Wilhelm said, “We are following the letter of the law.” She said the State of Minnesota had secured a variety of court orders that require Ray to have forced electroshock against his expressed wishes. Ms. Wilehlm says it’s all legal and she can’t do anything about it.
Krista Erickson, chair of MindFreedom’s Shield Campaign, sees it differently. “This is terrible. This is a serious human rights violation that should stop. I hope MindFreedom members and supporters speak out. Even if Minnesota is following the letter of the current law, the law ought to be changed. And Ray has not had the legal power to appeal to higher courts.”
I pointed out to Conservator Wilhelm that the public — when they find out about forced electroshock — is passionately opposed to their taxpayer money being used to force such brutality on citizens. Ms. Wilhelm did let slip that what is happening to Ray — involuntary outpatient electroshock — is not that uncommon in Minnesota.
But when Ms. Wilhelm found out we at MindFreedom are issuing one of our public human rights alert to you and others, at Ray’s repeated request, she said something chilling.
Ms. Wilhelm claimed she had a legal right to stop MindFreedom!
Ms. Wilhelm told me, “Only I can give you permission legally to say anything publicly about this.”
I pointed out we are not a medical facility, and that if she falsely claims we’re doing anything illegal then this is defamation. Which really is illegal.
Ms. Wilhelm laughed loudly in the phone, said “let our lawyers talk,” and hung up on me. I hope she hung up to read the First Amendment.
Let’s disobey Ms. Wilhelm!
Spread Ray’s alert far and wide! Speak out against this electrical torture, now!
Because… Remember… While the world marvels at the power of USA democracy:
If it’s Wednesday morning, then Ray Sandford is being led from his home — which is supposed to be his castle — to get another weekly forced procedure that can cause brain damage and wipe out memories.
- David W. Oaks, Director, MindFreedom International
~~~~~~~~~~~~
Mind your freedom. Disobey Ray’s conservator now!
Forward this alert to all appropriate places on and off the Internet, IMMEDIATELY!
And take the *below* actions. Thank you. Ray and I are counting on you!
~~~~~~~~~~~~
* * * ACTION * * * ACTION * * * ACTION * * *
You can do this in a moment. It’s free! DO IT NOW!
E-mail your firm but polite message to Minnesota Governor Tim Pawlenty.
SAMPLE MESSAGE — your own words are best:
“Investigate the weekly involuntary outpatient electroshock of Ray Sandford. Every Wednesday morning, MindFreedom says Ray is brought from Victory House in Columbia Heights, Minnesota to Mercy Hospital for forced electroshock. Stop all forced electroshock today! Taxpayer money should not fund torture!” [Your name/contact.]
E-mail address: tim.pawlenty@state.mn.us
Or use this handy web form
~~~~~~~~~~~~
* * * ADDITIONAL ACTIONS TO SUPPORT RAY! * * *
1) E-mail a complaint to Luthern Social Services of Minnesota (LSSMN) about Ray’s conservator.
Sample message:
“Investigate allegations that LSSMN employee Tonya Wilhelm tried to stop a public human rights alert by MindFreedom International about her client, Ray Sandford, who is receiving weekly outpatient involuntary electroshock at Mercy Hospital in Minneapolis. If verified, please reprimand, fire and replace Ms. Wilhelm, and please place this in her permanent personnel record. Please support human
rights.” [Your name/contact.]
Use LSSMN’s web page
Or phone Luthern Social Services at: (218) 726-4888
You can copy your message to headquarters of The Evangelical Lutheran Church in America (ELCA):
info@elca.org
From ELCA’s web site about their church: “It’s a story of a powerful and patient God who has boundless love for all people of the world, who brings justice for the oppressed.”
More right here
2) E-mail a complaint to Allina Hospital and Clinics, owner of Mercy Hospital.
Sample message:
“Investigate allegations that your patient Ray Sandford of Victory House is receiving involuntary outpatient electroconvulsive therapy against his will each Wednesday at Mercy Hospital.”
Use this web page
Or phone: (763) 236-6000
3) Ray is open to visitors and supportive postal mail:
Ray Sandford
Victory House
4427 Monroe St.
Columbia Heights, MN 55421-2880 USA
MindFreedom will print out and mail to Ray some of your e-mail messages to the Governor and others, and put some on the web. E-mail a copy of what you write to news@mindfreedom.org.
~~~~~~~~~~~~
AND ONE MORE THING!
Say “no” to mental health system censorship!
Disobey Ray’s conservator now!
PLEASE forward this public human alert to all appropriate places on and off the Internet, IMMEDIATELY! Thank you!
And for those who are interested, I had ECT in December of 2002. It was a huge mistake. My writing on this can be found here...
http://www.furiousseasons.com/archives/2007/07/a_readers_ect_experience.html
(Thank you Dawdy)
h/t to Gianna Kali at Beyond Meds
Saturday, September 6, 2008
The piece that got me writing again
I found this- and thought I would share it. It was originally published on Furious Seasons last summer. This is the article that made me start writing again. Enjoy!
**********************************************************************************
In the evening, the place I was in took a rhythm of it’s own. People fell asleep on chairs, and games of checkers and chess sat on the table, half played, like a lone sandwich sitting next to them.
It was nighttime. The patients had all been fed, and medicated, and were left in front of the TV while something as insipid as the Home Shopping Channel droned on providing white noise.
I had been in this locked ward for approx 20 days. My insurance, though I did not know it at the time, pooped out at 30.
And I hadn’t gotten better, I had gotten worse.
My doctor, who ran the hospital had unbeknownst to me called in my parents for a meeting, as well as the three doctors under him. All I knew was tonight I didn’t have my supper; instead one of the nurses helped me in the shower and bathed me because I was too catatonic to do so. She helped me get dressed and finally put on those slipper socks that all the inmates wear because our shoes had all been stripped of their laces.
She walked me out of the locked ward, stopping at the Christmas tree by the Nurses station in the main part, and let me touch an ornament. I smiled. We went into the doctor’s office and there was my mom, and dad sitting on a plushy bluish purple sofa, and three doctors I never saw before.
“Mr. and Mrs. S” went my doctor – “We’ve tried everything on your daughter but she is extremely depressed and still suicidal. We’ve tried several different drug therapies and nothing is working, and we are left with two things. She has ten days left on her insurance and if she is still like the way she is now, we will be forced to put her in a state hospital. Or we can try ECT”.
ECT was then explained to my parents, and they saw a video. And with the State’s leading expert on ECT who told them he would be personally administering it, papers were signed, I was convinced by mom and dad “ do this to make your mother happy”, and the next day woken up at 5 am to be driven to the local teaching hospital for my first round.
This isn’t the time or place to get into the fine details. Suffice it to say I was strapped down to a gurney and got poked prodded, IV’ed and what not. I saw monitors and a little contraption by my bedside that looked like R2D2. When the good doctor got to me, I had my treatment, later waking up and changing back to my street clothes and out of those hospital garbs that show your ass to the universe.
What was unusual was when they asked me who the President was; I thought it was Bill Clinton. But I got the other questions correct and maybe it’s a good thing to forget a few years of history.
But as the treatments went on, I noticed several things. I had a photographic memory prior. I could not recall huge events in my life. I would look at family pictures and know something happened but couldn’t recall it. Huge chunks of my adolescence and childhood went Poof! I also had the ability to recall in graphic detail every book I had ever read from “Green Eggs and Ham” to the last book I had been reading in the hospital which was of all weird things “ A Noonday Demon’. I had been a contestant on Jeopardy. Now I couldn’t even name the hosts name.
I couldn’t read anymore. I couldn’t even read a newspaper. I couldn’t watch TV. I forgot how to get to places I was driving to, even though I had been driving the same routes for years.
Now this may seem trivial. To some people, thinking the last president was Clinton could be a good thing. To some people forgetting horrible adolescence is a good thing.
But when you are a writer, someone who makes their LIVING out of writing, and cannot anymore its death.
Imagine you are an Olympic athlete or a pro ball player. You are injured to such an extent that you are living, but your career is gone. All you have, as a reminder that you were once one of the best in your field are medals, trophies, articles. But it’s all gone. This is your identity. Your whole life has been building up to this career, and it’s all gone, what do you do?
Coach. What do you do if your brain able to recall things well enough to teach/coach? You are a baseball player and you can’t explain to someone the difference between a ball and a bunt?
In other words, your body is living, breathing thing. Everything is working fine, your heart, your legs, and your eyes. But what about the brain? It’s like going into a house that has just been sold and is lying vacant while the new owners wait to get in. Functional but no one home.
ECT is one of those things, which seems to have its pros and cons, each group vocal. I mentioned to a friend today I was writing something about ECT and she acted like I was writing about clubbing baby seals.
I can tell you that the man who was next to me in all my treatments did fine. His memory loss was minimal. It helped him.
But I will also tell you that those of us who have had the bad experiences are afraid to or don’t know how to write or talk about their experience.
I tell people to please make sure about ECT- it’s a procedure. Know the pros and cons and don’t let a doctor coerce you into ANY procedure. Get a second opinion. Be informed. Ask to see the facility if possible, and talk to the nurses who will be assisting.
For me, it was a mistake. Most of my memory did come back 5 years later. I no longer act like a stroke victim where I cannot string two sentences together when I talk, and point to the TV when I mean the Fridge. I can read, and I can look now at my library and recall the majority of the books I have read, albeit not in such graphic detail, hut I will settle for that.
What I cannot settle for is it destroyed my writing career. My rasion d’etre. Everything I write now seems Sophomoric, and I struggle to do that. It’s like “Flowers For Algernon”, I have been a genius, and now I am sub standard. It pains me. It’s also humbled me.
I wrote earlier had I had a gun after my treatment ended, I would have eaten it. I still feel that way now. What holds me back is the hope that if it took 5 years for my memory to right itself. Maybe my writing will come back. But to go from writing at a degree of a Hemingway- to now where most days all I can write is “Pat the Bunny” has destroyed my heart and my soul.
**********************************************************************************
In the evening, the place I was in took a rhythm of it’s own. People fell asleep on chairs, and games of checkers and chess sat on the table, half played, like a lone sandwich sitting next to them.
It was nighttime. The patients had all been fed, and medicated, and were left in front of the TV while something as insipid as the Home Shopping Channel droned on providing white noise.
I had been in this locked ward for approx 20 days. My insurance, though I did not know it at the time, pooped out at 30.
And I hadn’t gotten better, I had gotten worse.
My doctor, who ran the hospital had unbeknownst to me called in my parents for a meeting, as well as the three doctors under him. All I knew was tonight I didn’t have my supper; instead one of the nurses helped me in the shower and bathed me because I was too catatonic to do so. She helped me get dressed and finally put on those slipper socks that all the inmates wear because our shoes had all been stripped of their laces.
She walked me out of the locked ward, stopping at the Christmas tree by the Nurses station in the main part, and let me touch an ornament. I smiled. We went into the doctor’s office and there was my mom, and dad sitting on a plushy bluish purple sofa, and three doctors I never saw before.
“Mr. and Mrs. S” went my doctor – “We’ve tried everything on your daughter but she is extremely depressed and still suicidal. We’ve tried several different drug therapies and nothing is working, and we are left with two things. She has ten days left on her insurance and if she is still like the way she is now, we will be forced to put her in a state hospital. Or we can try ECT”.
ECT was then explained to my parents, and they saw a video. And with the State’s leading expert on ECT who told them he would be personally administering it, papers were signed, I was convinced by mom and dad “ do this to make your mother happy”, and the next day woken up at 5 am to be driven to the local teaching hospital for my first round.
This isn’t the time or place to get into the fine details. Suffice it to say I was strapped down to a gurney and got poked prodded, IV’ed and what not. I saw monitors and a little contraption by my bedside that looked like R2D2. When the good doctor got to me, I had my treatment, later waking up and changing back to my street clothes and out of those hospital garbs that show your ass to the universe.
What was unusual was when they asked me who the President was; I thought it was Bill Clinton. But I got the other questions correct and maybe it’s a good thing to forget a few years of history.
But as the treatments went on, I noticed several things. I had a photographic memory prior. I could not recall huge events in my life. I would look at family pictures and know something happened but couldn’t recall it. Huge chunks of my adolescence and childhood went Poof! I also had the ability to recall in graphic detail every book I had ever read from “Green Eggs and Ham” to the last book I had been reading in the hospital which was of all weird things “ A Noonday Demon’. I had been a contestant on Jeopardy. Now I couldn’t even name the hosts name.
I couldn’t read anymore. I couldn’t even read a newspaper. I couldn’t watch TV. I forgot how to get to places I was driving to, even though I had been driving the same routes for years.
Now this may seem trivial. To some people, thinking the last president was Clinton could be a good thing. To some people forgetting horrible adolescence is a good thing.
But when you are a writer, someone who makes their LIVING out of writing, and cannot anymore its death.
Imagine you are an Olympic athlete or a pro ball player. You are injured to such an extent that you are living, but your career is gone. All you have, as a reminder that you were once one of the best in your field are medals, trophies, articles. But it’s all gone. This is your identity. Your whole life has been building up to this career, and it’s all gone, what do you do?
Coach. What do you do if your brain able to recall things well enough to teach/coach? You are a baseball player and you can’t explain to someone the difference between a ball and a bunt?
In other words, your body is living, breathing thing. Everything is working fine, your heart, your legs, and your eyes. But what about the brain? It’s like going into a house that has just been sold and is lying vacant while the new owners wait to get in. Functional but no one home.
ECT is one of those things, which seems to have its pros and cons, each group vocal. I mentioned to a friend today I was writing something about ECT and she acted like I was writing about clubbing baby seals.
I can tell you that the man who was next to me in all my treatments did fine. His memory loss was minimal. It helped him.
But I will also tell you that those of us who have had the bad experiences are afraid to or don’t know how to write or talk about their experience.
I tell people to please make sure about ECT- it’s a procedure. Know the pros and cons and don’t let a doctor coerce you into ANY procedure. Get a second opinion. Be informed. Ask to see the facility if possible, and talk to the nurses who will be assisting.
For me, it was a mistake. Most of my memory did come back 5 years later. I no longer act like a stroke victim where I cannot string two sentences together when I talk, and point to the TV when I mean the Fridge. I can read, and I can look now at my library and recall the majority of the books I have read, albeit not in such graphic detail, hut I will settle for that.
What I cannot settle for is it destroyed my writing career. My rasion d’etre. Everything I write now seems Sophomoric, and I struggle to do that. It’s like “Flowers For Algernon”, I have been a genius, and now I am sub standard. It pains me. It’s also humbled me.
I wrote earlier had I had a gun after my treatment ended, I would have eaten it. I still feel that way now. What holds me back is the hope that if it took 5 years for my memory to right itself. Maybe my writing will come back. But to go from writing at a degree of a Hemingway- to now where most days all I can write is “Pat the Bunny” has destroyed my heart and my soul.
Saturday, February 9, 2008
Scars on My Soul- My experience with ECT.
(Written in 2002, re written Feb 2008)
I have scars on my hands from touching certain people. Certain people, certain events have all left scars on my hands. " - JD Salinger
As I look back at my life, I feel a kinship to Salinger’s Seymour Glass. A grown up who would have been Holden Caulfield, had Holden not been suspended in time as a teenager. And one day when the pain of being with people, the agony of being different and feeling things stronger than others got to Seymour, he took a gun and went gently into that good night.
I hope when I do break I am stronger. I guess I am lucky, when the time came to break, I bent like a flower that bends with the rainfall.
I’ve been thinking a lot about people lately. About the good ones I ‘ve met and the bad ones. The evil ones. Yes, I have met pure evil, those that wished to hurt me by raping me, or beating me to an inch of my life. And all have left scars on my soul, like Seymour’s scars.
I have been out of the hospital since the end of December 2002 . I’m in recovery now. I’m supposed to be getting better, getting stronger. It’s hard. Last weekend I just wanted to destroy, to curl up in the bathroom and die. A few weekends ago I went to the train station and looked at the trains. But I didn’t jump. Or feel like jumping. It was if the act of train-spotting was enough. Indeed my carapace seemed to get stronger with each passing train. I finally left several hours later, went home, and slept soundly. I hadn’t been able to sleep without Seroquel since I got out of the hospital. That was the first night since then I slept without anything stronger than a glass of warm milk.
I went into the hospital on December 4. I didn’t want to go, I was given an ultimatum from work. It was like they put a gun to my head. "Hello Susan, well, you can either go to the hospital or you can get the sack. Which would you prefer?"
Let me backtrack. The human relations department gave me the ultimatum because it got so bad one night. I couldn’t jump in front of the train. I couldn’t be Anna Karenina. I didn’t have access to a gun -I had tried to purchase one to no avail. That left one method I never tried, namely because it frightened me. But the more I thought about it, the more it didn’t seem so bad. So one night in early December, when the pain was so horrible I couldn’t take it anymore, I took the belt from my green chenille bathrobe and an old kitchen chair and I went outside to find a nice sturdy tree in which I could hang myself. I found one, tied the belt like a noose around my neck and the tree branch, hiked it up, stood on the chair, and said a small prayer, looked at the moon and kicked the chair away.
I remember looking at the moon and how pretty it was, and how this didn’t hurt like I thought it was, it was very peaceful, like going to sleep. And I fell asleep ... And woke up with the branch on the grass, myself on the grass. I had failed and even worse, I had wet my pants. Talk about ignominy. I was totally abashed, ashamed, and I felt like a three-year-old who didn’t want their mommy to discover what they did.
So I went into the hospital. First I went to the local hospital’s emergency room. I was greeted by a nice older woman in her sixties who offered me a peppermint Life Saver as she typed my vital information into the hospital’s computer. Name, age, sex, social security, etc. She asked me how I felt right then, I said I really wanted to hurt myself. She asked me how I would do it in her office, I came up with several different ways. She looked at me. "You’re a pretty girl," she said. "Why are you in so much pain"?
Then two security guards came and got me and put me in the emergency room. Gave me one of those gowns that doesn’t cover your backside. I was given a chair to sit down, a blanket, and one of the guards stayed by my door for seven hours while the emergency room on call doc looked at me, a couple of nurses looked at me, and finally the doctor from the hospital came. During the time, I was treated to a turkey sandwich, which was delicious, and a carton of skim milk.
When the hospital doctor came, he asked me a few questions and then told me I better get dressed, I was going to be admitted to the other wing of the hospital. Two orderlies then came and got me once I was dressed and transported me to the mental care unit which is about three miles away, in the country.
About the hospital stay, what can you say, other than as hospitals go, this was a nicer one. My last hospitalization I had no insurance, so it was in the State psychiatric facility. This was more of a country club in comparison. The doctors were nice and I was medicated on different meds. But I was still suicidal. All I thought about when I wasn’t sleeping was how much I wanted to die. This perplexed the doctors. Surely the lithium, Zoloft, Wellbutrin, and all the other meds should be kicking in. I got worse. I started to see things that weren’t there. No worries, add a bit of Geodon to the mix, and Seroquel to calm the OCD that was developing. Everything will be OK soon. Trust the doctors.
But I was still suicidal. The nurses were watching me. Fifteen days into the hospitalization with nothing getting better, I had been seen by a panoply of doctors and they sat down with my parents and decided that perhaps ECT might get rid of the depression.
Forms were signed, and a week before Christmas I got my first electroshock treatment. I had a total of six altogether. I had problems with my veins and had to get a PIC line put in to help make the treatments easier. The treatments left me feeling woozy, when they were done, it was difficult to get dressed again and try to remain "normal". I would try to eat my breakfast, but I just wanted to sleep. The first treatment left me in agony, I could count every one of my muscles. I remember in tenth grade biology class that a human has over 600 muscles. I felt every one of them that day. I couldn’t move. It was agony.
Only one other person close to my age was getting the treatment. The others were senior citizens. They looked at the young man Charles and I with understanding and pity. We were so young. Several told me their stories - they were depressed because their spouse of 50 some years died, or a child died, or a grandchild had been murdered. One lady had a husband at home who had Alzheimer’s and she was depressed over his care.
I just knew I would lie down, electrodes placed to various parts of my body and when it was over I could have a glass of cranberry juice. The cotton mouth I would experience was not akin to the type of cotton mouth you get when you drink.
My last treatment was the day after Boxing Day, December 27. I went home on December 28. On December 30, my beloved cat Cleopatra died. She was 16. I had her for 15 ½ years. About my despair on losing her I cannot bring myself to write. I miss her, I think I will always miss my gray darling. She was my best friend. It hurt me that I was so fragile from just getting out of the hospital - and now this.
I started an outpatient program at the hospital right after New Years. Nine thirty till two thirty. Some of it was good, but a lot of it I found to be not helpful. I was still weak from the ECT, I had problems recalling simple things. Ask me who the president was, I knew it was President Bush, but I thought it was the father, not the son. I thought it was a decade or so earlier than what it was. There were gaps in my thinking, I knew something horrible had happened on September 11, but I couldn’t recall what it was, despite the fact I knew people who died on that day. I would sit in group therapy, something which even when I am well, I have to admit I am not a fan of. I don’t have the personality type to be an effective patient for a group setting. I am too much the introvert. And that part of my personality was coming through loud and clear. I was not participating, or commenting to the other people. I couldn’t eat during meal times. I cried a lot. I asked to go for one on one counseling and was told the insurance company wanted me in this type of atmosphere.
Finally after six weeks I was discharged. I had made no progress, and the worst thing was I could not write. I realized I had to take the bull by the horns, and could not stay passive in my recovery. I had to be active.
I found a support group via the NAMI website that is about 20 miles away. It meets every Friday night. I would like to say I go every Friday but I am not that diligent. I go every other week. I went back to work. This was the hardest thing for me. My brain is barely functioning, and I am still suicidal. Some nights I still go to the train station, and look at the trains, thinking about jumping. But I don’t. I’m in recovery. Sometimes I think of OD’ing on my meds, but I don’t. I’m in recovery. The feeling is strong. I try to stay afloat. It’s two steps forward sometimes, three steps back. I’ve developed bulimia again, something that I haven’t had since I was a teenager. I have OCD now, in little snatches, and at work a mild case of paranoia. The Kinks sang "Paranoia, will destroya", and I just have to keep saying to myself, it’s all in my head. The suicidal thoughts will go away. It’s all in my head. The thoughts about wanting to hurt myself, all go away, I am in recovery.
Right now I have to go to work and make sure I stay afloat. I am in recovery.
I learned I have some real good friends who stood by me when I needed them. I had other friends who I lost because it was too much for them to deal with. I miss them terribly and blame myself, even though I know no one is to blame. I guess when the chips fall you learn who really do care about you. And for them, I have to get strong again.
I adopted a new cat, Holly, in February. I couldn’t take living by myself without something in the apartment. She’s a young cat and we are becoming fast friends. I still miss Cleo. But there is room in my heart for two cats.
****
I slept like a child. I dreamt that night, of the flying dream I haven’t dreamt since childhood. I must be getting stronger. I soared to the heavens, that must mean something.
Heavens. And Hells. The inner turmoil that comes with being up and down. A year ago this webmaster told me I wouldn’t get better unless I accepted that I have bipolar. At the time I didn’t want to accept it, I loved the highs and the lows gave me creativity. The problem was the lows were getting lower and lower and I was starting to embrace suicide. My attempts were becoming more lethal. But I didn’t want to be compliant. I didn’t want to take my meds, they were taking away the highs. I didn’t realize they were also giving me the crashing lows. I was playing with fire and getting burnt. My life was hanging on by a thread. I can see that now. I didn’t need drugs or alcohol to help me deal with my moods, I was getting high off of being high and low. The highs made me feel like God. The lows made me feel like a tortured poet.
I was killing myself by not being med compliant. It hurts to say that now. I was hurting myself by not wanting to get well. It was a joke to me, so what if I was off work on medical leave for eight months? I got to write everyday. I slept till nine and wrote till midnight. I could be a hermit and isolate. And I had those lovely demons that only I could hear. My Muse.
I realize now my Muse was killing me. His sweet siren song was destroying me as surely as Odysseus had to chain himself to the mast not to hear the sweet mermaids sing. The mermaids were singing to me, their songs weren’t waking me up as I drowned in the madness of my mind. Instead, they were causing me to drown in my own made lake, the route I was going was taking me more and more into the inner workings of my mind. The dragons I was fighting, self pity, self despair, fear and loathing, were winning. I was on a one way course to Hell, literally and figuratively.
It’s been hard to realize the things that you love the most can hurt you.
During this time one of my best friends, Chris Brown, died tragically in a car accident. I miss him terribly. It is with love that I dedicate this article to him and his memory.
I have scars on my hands from touching certain people. Certain people, certain events have all left scars on my hands. " - JD Salinger
As I look back at my life, I feel a kinship to Salinger’s Seymour Glass. A grown up who would have been Holden Caulfield, had Holden not been suspended in time as a teenager. And one day when the pain of being with people, the agony of being different and feeling things stronger than others got to Seymour, he took a gun and went gently into that good night.
I hope when I do break I am stronger. I guess I am lucky, when the time came to break, I bent like a flower that bends with the rainfall.
I’ve been thinking a lot about people lately. About the good ones I ‘ve met and the bad ones. The evil ones. Yes, I have met pure evil, those that wished to hurt me by raping me, or beating me to an inch of my life. And all have left scars on my soul, like Seymour’s scars.
I have been out of the hospital since the end of December 2002 . I’m in recovery now. I’m supposed to be getting better, getting stronger. It’s hard. Last weekend I just wanted to destroy, to curl up in the bathroom and die. A few weekends ago I went to the train station and looked at the trains. But I didn’t jump. Or feel like jumping. It was if the act of train-spotting was enough. Indeed my carapace seemed to get stronger with each passing train. I finally left several hours later, went home, and slept soundly. I hadn’t been able to sleep without Seroquel since I got out of the hospital. That was the first night since then I slept without anything stronger than a glass of warm milk.
I went into the hospital on December 4. I didn’t want to go, I was given an ultimatum from work. It was like they put a gun to my head. "Hello Susan, well, you can either go to the hospital or you can get the sack. Which would you prefer?"
Let me backtrack. The human relations department gave me the ultimatum because it got so bad one night. I couldn’t jump in front of the train. I couldn’t be Anna Karenina. I didn’t have access to a gun -I had tried to purchase one to no avail. That left one method I never tried, namely because it frightened me. But the more I thought about it, the more it didn’t seem so bad. So one night in early December, when the pain was so horrible I couldn’t take it anymore, I took the belt from my green chenille bathrobe and an old kitchen chair and I went outside to find a nice sturdy tree in which I could hang myself. I found one, tied the belt like a noose around my neck and the tree branch, hiked it up, stood on the chair, and said a small prayer, looked at the moon and kicked the chair away.
I remember looking at the moon and how pretty it was, and how this didn’t hurt like I thought it was, it was very peaceful, like going to sleep. And I fell asleep ... And woke up with the branch on the grass, myself on the grass. I had failed and even worse, I had wet my pants. Talk about ignominy. I was totally abashed, ashamed, and I felt like a three-year-old who didn’t want their mommy to discover what they did.
So I went into the hospital. First I went to the local hospital’s emergency room. I was greeted by a nice older woman in her sixties who offered me a peppermint Life Saver as she typed my vital information into the hospital’s computer. Name, age, sex, social security, etc. She asked me how I felt right then, I said I really wanted to hurt myself. She asked me how I would do it in her office, I came up with several different ways. She looked at me. "You’re a pretty girl," she said. "Why are you in so much pain"?
Then two security guards came and got me and put me in the emergency room. Gave me one of those gowns that doesn’t cover your backside. I was given a chair to sit down, a blanket, and one of the guards stayed by my door for seven hours while the emergency room on call doc looked at me, a couple of nurses looked at me, and finally the doctor from the hospital came. During the time, I was treated to a turkey sandwich, which was delicious, and a carton of skim milk.
When the hospital doctor came, he asked me a few questions and then told me I better get dressed, I was going to be admitted to the other wing of the hospital. Two orderlies then came and got me once I was dressed and transported me to the mental care unit which is about three miles away, in the country.
About the hospital stay, what can you say, other than as hospitals go, this was a nicer one. My last hospitalization I had no insurance, so it was in the State psychiatric facility. This was more of a country club in comparison. The doctors were nice and I was medicated on different meds. But I was still suicidal. All I thought about when I wasn’t sleeping was how much I wanted to die. This perplexed the doctors. Surely the lithium, Zoloft, Wellbutrin, and all the other meds should be kicking in. I got worse. I started to see things that weren’t there. No worries, add a bit of Geodon to the mix, and Seroquel to calm the OCD that was developing. Everything will be OK soon. Trust the doctors.
But I was still suicidal. The nurses were watching me. Fifteen days into the hospitalization with nothing getting better, I had been seen by a panoply of doctors and they sat down with my parents and decided that perhaps ECT might get rid of the depression.
Forms were signed, and a week before Christmas I got my first electroshock treatment. I had a total of six altogether. I had problems with my veins and had to get a PIC line put in to help make the treatments easier. The treatments left me feeling woozy, when they were done, it was difficult to get dressed again and try to remain "normal". I would try to eat my breakfast, but I just wanted to sleep. The first treatment left me in agony, I could count every one of my muscles. I remember in tenth grade biology class that a human has over 600 muscles. I felt every one of them that day. I couldn’t move. It was agony.
Only one other person close to my age was getting the treatment. The others were senior citizens. They looked at the young man Charles and I with understanding and pity. We were so young. Several told me their stories - they were depressed because their spouse of 50 some years died, or a child died, or a grandchild had been murdered. One lady had a husband at home who had Alzheimer’s and she was depressed over his care.
I just knew I would lie down, electrodes placed to various parts of my body and when it was over I could have a glass of cranberry juice. The cotton mouth I would experience was not akin to the type of cotton mouth you get when you drink.
My last treatment was the day after Boxing Day, December 27. I went home on December 28. On December 30, my beloved cat Cleopatra died. She was 16. I had her for 15 ½ years. About my despair on losing her I cannot bring myself to write. I miss her, I think I will always miss my gray darling. She was my best friend. It hurt me that I was so fragile from just getting out of the hospital - and now this.
I started an outpatient program at the hospital right after New Years. Nine thirty till two thirty. Some of it was good, but a lot of it I found to be not helpful. I was still weak from the ECT, I had problems recalling simple things. Ask me who the president was, I knew it was President Bush, but I thought it was the father, not the son. I thought it was a decade or so earlier than what it was. There were gaps in my thinking, I knew something horrible had happened on September 11, but I couldn’t recall what it was, despite the fact I knew people who died on that day. I would sit in group therapy, something which even when I am well, I have to admit I am not a fan of. I don’t have the personality type to be an effective patient for a group setting. I am too much the introvert. And that part of my personality was coming through loud and clear. I was not participating, or commenting to the other people. I couldn’t eat during meal times. I cried a lot. I asked to go for one on one counseling and was told the insurance company wanted me in this type of atmosphere.
Finally after six weeks I was discharged. I had made no progress, and the worst thing was I could not write. I realized I had to take the bull by the horns, and could not stay passive in my recovery. I had to be active.
I found a support group via the NAMI website that is about 20 miles away. It meets every Friday night. I would like to say I go every Friday but I am not that diligent. I go every other week. I went back to work. This was the hardest thing for me. My brain is barely functioning, and I am still suicidal. Some nights I still go to the train station, and look at the trains, thinking about jumping. But I don’t. I’m in recovery. Sometimes I think of OD’ing on my meds, but I don’t. I’m in recovery. The feeling is strong. I try to stay afloat. It’s two steps forward sometimes, three steps back. I’ve developed bulimia again, something that I haven’t had since I was a teenager. I have OCD now, in little snatches, and at work a mild case of paranoia. The Kinks sang "Paranoia, will destroya", and I just have to keep saying to myself, it’s all in my head. The suicidal thoughts will go away. It’s all in my head. The thoughts about wanting to hurt myself, all go away, I am in recovery.
Right now I have to go to work and make sure I stay afloat. I am in recovery.
I learned I have some real good friends who stood by me when I needed them. I had other friends who I lost because it was too much for them to deal with. I miss them terribly and blame myself, even though I know no one is to blame. I guess when the chips fall you learn who really do care about you. And for them, I have to get strong again.
I adopted a new cat, Holly, in February. I couldn’t take living by myself without something in the apartment. She’s a young cat and we are becoming fast friends. I still miss Cleo. But there is room in my heart for two cats.
****
I slept like a child. I dreamt that night, of the flying dream I haven’t dreamt since childhood. I must be getting stronger. I soared to the heavens, that must mean something.
Heavens. And Hells. The inner turmoil that comes with being up and down. A year ago this webmaster told me I wouldn’t get better unless I accepted that I have bipolar. At the time I didn’t want to accept it, I loved the highs and the lows gave me creativity. The problem was the lows were getting lower and lower and I was starting to embrace suicide. My attempts were becoming more lethal. But I didn’t want to be compliant. I didn’t want to take my meds, they were taking away the highs. I didn’t realize they were also giving me the crashing lows. I was playing with fire and getting burnt. My life was hanging on by a thread. I can see that now. I didn’t need drugs or alcohol to help me deal with my moods, I was getting high off of being high and low. The highs made me feel like God. The lows made me feel like a tortured poet.
I was killing myself by not being med compliant. It hurts to say that now. I was hurting myself by not wanting to get well. It was a joke to me, so what if I was off work on medical leave for eight months? I got to write everyday. I slept till nine and wrote till midnight. I could be a hermit and isolate. And I had those lovely demons that only I could hear. My Muse.
I realize now my Muse was killing me. His sweet siren song was destroying me as surely as Odysseus had to chain himself to the mast not to hear the sweet mermaids sing. The mermaids were singing to me, their songs weren’t waking me up as I drowned in the madness of my mind. Instead, they were causing me to drown in my own made lake, the route I was going was taking me more and more into the inner workings of my mind. The dragons I was fighting, self pity, self despair, fear and loathing, were winning. I was on a one way course to Hell, literally and figuratively.
It’s been hard to realize the things that you love the most can hurt you.
During this time one of my best friends, Chris Brown, died tragically in a car accident. I miss him terribly. It is with love that I dedicate this article to him and his memory.
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